Dynamics of Interaction among Professionals, Informal Supporters, and Family Caregivers of People with Dementia along the Dementia Care Pathway: A Nationwide Survey in Japan.
Dynamics of Interaction among Professionals, Informal Supporters, and Family Caregivers of People with Dementia along the Dementia Care Pathway: A Nationwide Survey in Japan.
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DOI：
10.3390/ijerph20065044
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发表时间：
2023-03-13
影响因子：
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通讯作者：
Suzuki, Morio
中科院分区：
文献类型：
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作者：
Takechi, Hajime;Hara, Naoko;Eguchi, Kyoko;Inomata, Shoko;Okura, Yuki;Shibuya, Miwa;Yoshino, Hiroshi;Ogawa, Noriyuki;Suzuki, Morio
本研究旨在阐明信息提供和人际互动的动态，以满足家庭护理人员的需求。进行了一项问卷调查，包括诊断时和诊断后收到的信息、咨询的人员和资源、需求和以护理人员为导向的结果等项目。在受访者中，2295 名照顾痴呆症患者的人在诊断后被分为四分位数，并对差异进行统计分析。第一至第四四分位数的诊断后时间分别为 0.73 ± 0.4、2.52 ± 0.49、4.89 ± 0.73 和 10.82 ± 3.7 年。从第一四分位数到第四四分位数，家庭护理人员咨询的人数显着增加 (p < 0.001)。在此期间，专业人士和非正式支持者的属性根据四分位数而变化。随着时间的推移，人们对诊断的接受程度越来越高，但它对家庭护理人员生活的影响也越来越大。这些发现揭示了随着时间的推移，家庭照顾者的需求以及满足他们需求的互动动态存在差异。非正式支持者占总资源的很大一部分。然而，许多家庭照顾者认为信息和支持不足。因此，需要不断改革护理途径。
This study aims to clarify the dynamics of information provision and human interaction to satisfy the needs of family caregivers. A questionnaire survey consisting of items on information received at and after diagnosis, persons and resources consulted, needs, and caregiver-oriented outcomes was conducted. Among the respondents, 2295 individuals who were caring for people with dementia were divided into quartiles by the time after diagnosis, and differences were statistically analyzed. The time after diagnosis in the first to fourth quartiles was 0.73 ± 0.4, 2.52 ± 0.49, 4.89 ± 0.73, and 10.82 ± 3.7 years, respectively. The number of persons consulted by family caregivers increased significantly from the first to the fourth quartiles (p < 0.001). During this time, attributes of professionals and informal supporters changed depending on the quartile. As time progressed, acceptance of the diagnosis increased, but so did its impact on the lives of family caregivers. These findings revealed differences over time in what family caregivers wanted and the dynamics of interactions that filled their needs. Informal supporters accounted for a significant proportion of the total resources. However, many family caregivers thought the information and support were insufficient. Thus, continuous reform of the care pathway is needed.