Protocol for the IDEAL-2 longitudinal study: following the experiences of people with dementia and their primary carers to understand what contributes to living well with dementia and enhances active life
Protocol for the IDEAL-2 longitudinal study: following the experiences of people with dementia and their primary carers to understand what contributes to living well with dementia and enhances active life
复制标题
DOI：
10.1186/s12889-018-6129-7
复制
发表时间：
2018-10-30
影响因子：
4.5
通讯作者：
Clare, Linda
中科院分区：
文献类型：
--
作者：
Silarova, Barbora;Nelis, Sharon M.;Clare, Linda
背景主要需要对痴呆症患者及其主要照顾者的经历进行纵向研究，因为相对较少的人知道与良好生活能力相关的因素如何随着时间的推移而变化。IDEA-2研究的主要目的是调查痴呆症患者和他们的主要照顾者如何以及为什么随着时间的推移，他们与痴呆症患者良好相处的能力会发生变化，同时探索他们对医疗和护理服务的使用以及他们未得到满足的需求。方法IDEAL-2将建立在改善痴呆症体验和增强积极生活(IDEAL)队列的基础上，1547人(在2014年7月至2016年7月期间招募时，他们患有轻中度痴呆症)和他们在英国的1283名主要照顾者。现有的队列将增加来自以下群体的更多患有轻度至中度痴呆症的参与者(以及他们的主要照顾者，如果有并愿意的话)：患有较罕见形式的痴呆症的人，和/或90岁或以上的人
BackgroundThere is a major need for longitudinal research examining the experiences of people with dementia and their primary carers, as relatively little is known about how the factors associated with capability to live well' vary over time. The main aim of the IDEAL-2 study is to investigate how and why, over time, people with dementia and their primary carers might vary in their capability to live well with dementia, whilst exploring both their use of health and care services and their unmet needs.MethodsIDEAL-2 will build on the Improving the experience of Dementia and Enhancing Active Life (IDEAL) cohort of 1547 people (who, at recruitment between July 2014 and July 2016, had mild-to-moderate dementia), and their 1283 primary carers in Great Britain. The existing cohort will be enriched with additional participants with mild-to-moderate dementia (and their primary carers where available and willing) from the following groups: people with rarer forms of dementia, and/or those who are 90years or