Quality-of-life measures in children with neurological conditions: pediatric Neuro-QOL.
Quality-of-life measures in children with neurological conditions: pediatric Neuro-QOL.
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DOI：
10.1177/1545968311412054
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发表时间：
2012-01
影响因子：
4.2
通讯作者：
Cella D
中科院分区：
文献类型：
--
作者：
Lai JS;Nowinski C;Victorson D;Bode R;Podrabsky T;McKinney N;Straube D;Holmes GL;McDonald CM;Henricson E;Abresch RT;Moy CS;Cella D
需要一个全面、可靠和有效的测量系统来监测患有神经系统疾病的儿童的变化，这些儿童经历了终身的功能限制。本文介绍了神经疾病生活质量（Neuro-QOL）测量系统的儿科版本的发展和心理测量特性。儿科神经生活质量包括通用和有针对性的措施。采用文献综述、焦点小组、个人访谈、儿童认知访谈和共识会议来确定和最终确定相关领域和项目内容。对来自美国普通人群的1018名10至17岁儿童进行了一般措施测试，并对171名类似年龄的肌营养不良症或癫痫儿童进行了针对性措施测试。采用因子分析法评价了问卷的可信度。对于一维域，项目参数估计使用项目反应理论模型。拟合指数可接受的测量值被校准为项目库;拟合指数不可接受的测量值被视为汇总量表。制定了十项措施：8个通用或目标库（焦虑、抑郁、愤怒、与同伴的互动、疲劳、疼痛、应用认知和耻辱）和2个通用量表（上肢和下肢功能）。这些银行可靠地（r > 0.90）测量了63.2%至100%的受试儿童。儿童神经生活质量是一个全面的测量系统，具有可接受的心理测量特性，可用于计算机自适应测试。下一步是在各种临床人群中验证这些措施。
A comprehensive, reliable, and valid measurement system is needed to monitor changes in children with neurological conditions who experience lifelong functional limitations. This article describes the development and psychometric properties of the pediatric version of the Quality of Life in Neurological Disorders (Neuro-QOL) measurement system. The pediatric Neuro-QOL consists of generic and targeted measures. Literature review, focus groups, individual interviews, cognitive interviews of children and consensus meetings were used to identify and finalize relevant domains and item content. Testing was conducted on 1018 children aged 10 to 17 years drawn from the US general population for generic measures and 171 similarly aged children with muscular dystrophy or epilepsy for targeted measures. Dimensionality was evaluated using factor analytic methods. For unidimensional domains, item parameters were estimated using item response theory models. Measures with acceptable fit indices were calibrated as item banks; those without acceptable fit indices were treated as summary scales. Ten measures were developed: 8 generic or targeted banks (anxiety, depression, anger, interaction with peers, fatigue, pain, applied cognition, and stigma) and 2 generic scales (upper and lower extremity function). The banks reliably (r > 0.90) measured 63.2% to 100% of the children tested. The pediatric Neuro-QOL is a comprehensive measurement system with acceptable psychometric properties that could be used in computerized adaptive testing. The next step is to validate these measures in various clinical populations.
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影响因子：
3.6
作者：
Lai, Jin-Shei;Butt, Zeeshan;Goldman, Stewart
通讯作者：
Goldman, Stewart
DOI：
10.1016/j.pmr.2008.12.004
发表时间：
2009-05-01
影响因子：
1.7
作者：
Nutini, Marykatharine;Karczewski, Michelle;Capoor, Jaishree
通讯作者：
Capoor, Jaishree
影响因子：
1.2
作者：
Orlando, M;Thissen, D
通讯作者：
Thissen, D
影响因子：
5.6
作者：
DEVINSKY, O;VICKREY, BG;HAYS, RD
通讯作者：
HAYS, RD
DOI：
10.1177/153944929601600201
发表时间：
1996-03-01
期刊：
OCCUPATIONAL THERAPY JOURNAL OF RESEARCH
影响因子：
--
作者：
Lai, JS;Fisher, AG;Bundy, AC
通讯作者：
Bundy, AC