Understanding the experience of veterans who require lower limb amputation in the veterans health administration.

Understanding the experience of veterans who require lower limb amputation in the veterans health administration.
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DOI:
10.1371/journal.pone.0265620
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发表时间:
2022
期刊:
影响因子:
3.7
通讯作者:
Czerniecki J
Czerniecki J
中科院分区:
综合性期刊3区
文献类型:
--
作者:
Leonard C;Sayre G;Williams S;Henderson A;Norvell D;Turner AP;Czerniecki J

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关于因慢性肢体威胁性缺血(CLTI)而接受下肢截肢的患者的经历及其参与截肢决策的定性研究有限。这项研究的目的是了解患者与截肢相关的生活经历以及患者参与共同决策的情况。因 CLTI 导致经胫骨或经跖骨截肢后 6-12 个月,对退伍军人进行了现象学访谈。两位分析师阅读并总结了访谈内容,他们讨论了每次访谈的内容以及访谈之间的关系,以确定患者体验中出现的跨领域要素。 2019 年 3 月至 8 月期间对 12 名患者进行了访谈。确定了患者生活经历和参与共同决策的三个交叉要素:1)缺乏决策意识; 2) 积极致力于康复,作为对感知到的独立性丧失的回应; 3) 作为退伍军人经历过截肢。患者并未报告高度参与有关截肢或截肢水平的共同决策。了解患者的经历和优先事项对于支持因 CLTI 导致截肢的退伍军人做出共同决策至关重要。
There is limited qualitative research on the experience of patients undergoing lower limb amputation due to chronic limb threatening ischemia (CLTI) and their participation in amputation-level decisions. This study was performed to understand patient lived experiences related to amputation and patient involvement in shared decision making. Phenomenological interviews were conducted with Veterans 6–12 months post transtibial or transmetatarsal amputation due to CLTI. Interviews were read and summarized by two analysts who discussed the contents of each interview and relationships between interviews to identify emergent, cross-cutting elements of patient experience. Twelve patients were interviewed between March and August 2019. Three cross cutting elements of patient lived experience and participation in shared decision making were identified: 1) Lacking a sense of decision making; 2) Actively working towards recovery as response to a perceived loss of independence; and 3) Experiencing amputation as a Veteran. Patients did not report a high level of involvement in shared decision making about their amputation or amputation level. Understanding patient experiences and priorities is crucial to supporting shared decision making for Veterans with amputation due to CLTI.
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期刊: HEALTH AFFAIRS
影响因子: 9.7
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