Physician privacy concerns when disclosing patient data for public health purposes during a pandemic influenza outbreak.
Physician privacy concerns when disclosing patient data for public health purposes during a pandemic influenza outbreak.
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DOI：
10.1186/1471-2458-11-454
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发表时间：
2011-06-09
影响因子：
4.5
通讯作者：
Jonker E
中科院分区：
文献类型：
--
作者：
El Emam K;Mercer J;Moreau K;Grava-Gubins I;Buckeridge D;Jonker E
提供者对隐私的担忧一直是为公共卫生目的披露患者信息的障碍。即使是强制性的法定疾病报告也是如此。在大流行的背景下，有人认为公共利益应该取代个人的隐私权。目前尚不清楚这些提供商隐私问题的确切性质，以及它们是否在大流行的背景下被淡化。我们的目的是了解在2009年秋季H1N1流感大流行爆发期间，可能影响家庭医生向公共卫生机构报告患者监测数据的隐私障碍。2009年10月29日至31日期间，37名家庭医生参加了五个焦点小组。他们还完成了一项关于他们愿意向公共卫生部门披露的数据的调查。描述性统计用于总结参与者愿意披露的患者详细信息的数量，有助于数据披露的因素，以及对这些因素的共识。定性数据的分析是基于扎实的理论。家庭医生不愿向公共卫生部门披露患者数据。这是由于担心公共卫生机构在多大程度上可靠地保护健康信息（信任信念），以及因披露健康信息而造成损失的可能性（风险信念）。我们确定了公共卫生单位可以采取的六项具体行动，这些行动可能会影响这些信念，并可能增加出于公共卫生目的披露患者信息的意愿。围绕一种新型流感大流行的不确定性并没有改变医生对披露患者数据的隐私担忧。重要的是解决这些问题，以确保在未来疫情期间可靠地报告。
Privacy concerns by providers have been a barrier to disclosing patient information for public health purposes. This is the case even for mandated notifiable disease reporting. In the context of a pandemic it has been argued that the public good should supersede an individual's right to privacy. The precise nature of these provider privacy concerns, and whether they are diluted in the context of a pandemic are not known. Our objective was to understand the privacy barriers which could potentially influence family physicians' reporting of patient-level surveillance data to public health agencies during the Fall 2009 pandemic H1N1 influenza outbreak. Thirty seven family doctors participated in a series of five focus groups between October 29-31 2009. They also completed a survey about the data they were willing to disclose to public health units. Descriptive statistics were used to summarize the amount of patient detail the participants were willing to disclose, factors that would facilitate data disclosure, and the consensus on those factors. The analysis of the qualitative data was based on grounded theory. The family doctors were reluctant to disclose patient data to public health units. This was due to concerns about the extent to which public health agencies are dependable to protect health information (trusting beliefs), and the possibility of loss due to disclosing health information (risk beliefs). We identified six specific actions that public health units can take which would affect these beliefs, and potentially increase the willingness to disclose patient information for public health purposes. The uncertainty surrounding a pandemic of a new strain of influenza has not changed the privacy concerns of physicians about disclosing patient data. It is important to address these concerns to ensure reliable reporting during future outbreaks.
DOI：
10.1016/0749-5978(91)90020-t
发表时间：
1991-12-01
影响因子：
4.6
作者：
AJZEN, I
通讯作者：
AJZEN, I