Challenges and Opportunities of Epidemiological Studies to Reduce the Burden of Cancers in Young Adults.
Challenges and Opportunities of Epidemiological Studies to Reduce the Burden of Cancers in Young Adults.
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减少年轻人癌症负担的流行病学研究的挑战和机遇。
DOI：
10.1007/s40471-022-00286-9
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发表时间：
2023
影响因子：
3.3
通讯作者：
中科院分区：
文献类型：
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作者：
Nichols,HazelB;Wernli,KarenJ;Chawla,Neetu;O'Meara,EllenS;Gray,MarlaineFigueroa;Green,LauraE;Baggett,ChristopherD;Casperson,Mallory;Chao,Chun;Jones,SaleneMW;Kirchhoff,AnneC;Kuo,Tzy-Mey;Lee,Catherine;Malogolowkin,Marcio;
如今，美国有超过 190 万青少年和青年癌症（AYA，在 15 至 39 岁之间被诊断）的幸存者。解决该群体癌症负担的流行病学研究一直是研究界最近的焦点。在本文中，我们讨论 AYA 人群癌症流行病学和卫生服务研究的方法和数据资源。我们考虑使用来自癌症登记、重要记录、医疗保健利用和调查的数据的研究，以及每一项所伴随的挑战和机遇。为了说明每个数据源的优势，我们提供了与这些数据源一致且对 AYA 显着的研究问题或领域的示例。整合癌症登记、重要记录、医疗保健数据和基于调查的研究各自的优势，为 AYA 癌症治疗和生存的创新和有影响力的研究奠定了基础，以便全面了解不同的 AYA 需求和经验。
There are >1.9 million survivors of adolescent and young adult cancers (AYA, diagnosed at ages 15–39) living in the U.S. today. Epidemiologic studies to address the cancer burden in this group have been a relatively recent focus of the research community. In this article, we discuss approaches and data resources for cancer epidemiology and health services research in the AYA population. We consider research that uses data from cancer registries, vital records, healthcare utilization, and surveys, and the accompanying challenges and opportunities of each. To illustrate the strengths of each data source, we present example research questions or areas that are aligned with these data sources and salient to AYAs. Integrating the respective strengths of cancer registry, vital records, healthcare data, and survey-based studies sets the foundation for innovative and impactful research on AYA cancer treatment and survivorship to inform a comprehensive understanding of diverse AYA needs and experiences.