The Future of the Disabled in Liberal Society: An Ethical Analysis
The Future of the Disabled in Liberal Society: An Ethical Analysis
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自由社会中残疾人的未来：伦理分析
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发表时间：
2000
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影响因子：
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通讯作者：
H. Reinders
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文献类型：
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作者：
H. Reinders
《自由社会中残疾人的未来》从精神残疾者及其家庭的角度对人类基因研究的发展提出了质疑。汉斯·s·莱因德斯认为，当我们使用“疾病”和“缺陷”等术语来描述基因工程很可能消除的条件时，我们可能也在假设残疾的生活是可悲和可怕的。Reinders指出，防止残疾生活的可能性与我们对残疾公民充分融入社会的承诺是不一致的。随着基因检测程序的激增，这些不同观点之间的紧张关系引起了我们所有人的关注。Reinders警告说，人类遗传学的预防性使用甚至可能对帮助残疾人及其家庭的社会保障和福利福利构成威胁。Reinders还认为，这种冲突无法在公共道德层面上得到解决或控制。因为自由社会对个人自由和选择作出了承诺，其成员可以考虑将人类遗传学的诊断和治疗用途作为公民个人的选择。一个自由的社会将捍卫生育自由作为一个原则问题。公民可以根据自己的个人价值观选择子女。Reinders的结论是，自由社会中智障人士的未来将取决于我们对人类生命价值的道德信念的力量，而不是自由道德的保护力量。这本对当代生命伦理学的有力批判肯定会成为那些对人类发展、特殊教育、伦理学、哲学和神学感兴趣的人的必读书目。
"The Future of the Disabled in Liberal Society" questions developments in human genetic research from the perspective of persons with mental disabilities and their families. Hans S. Reinders argues that when we use terms such as "disease" and "defect" to describe conditions that genetic engineering might well eliminate, we may also be assuming that disabled lives are deplorable and horrific. Reinders points out that the possibility of preventing disabled lives is at odds with our commitments to the full inclusion of disabled citizens in society. The tension between these different perspectives is of concern to all of us as genetic testing procedures proliferate. Reinders warns that preventative uses of human genetics might even become a threat to the social security and welfare benefits that help support disabled persons and their families. Reinders also argues that this conflict cannot be resolved or controlled on the level of public morality. Because a liberal society makes a commitment to individual freedom and choice, its members can consider the diagnostic and therapeutic uses of human genetics as options available to individual citizens. A liberal society will defend reproductive freedom as a matter of principle. Citizens may select their offspring in accord with their own personal values. Reinders concludes that the future of the mentally disabled in liberal society will depend on the strength of our moral convictions about the value of human life, rather than on the protective force of liberal morality. This powerful critique of contemporary bioethics is sure to become required reading for those interested in human development, special education, ethics, philosophy and theology.