Narratives of health and illness: Arts-based research capturing the lived experience of dementia
Narratives of health and illness: Arts-based research capturing the lived experience of dementia
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健康与疾病的叙述：基于艺术的研究捕捉痴呆症的生活经历
DOI：
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发表时间：
2019
期刊：
影响因子：
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通讯作者：
D. O’Neill
中科院分区：
文献类型：
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作者：
H. Moss;D. O’Neill
引言本文介绍了三位艺术家的住宅在教学医院的老年医学单位。驻留的目的是创造高艺术质量的新作品，反映痴呆症患者的生活经历，并更好地了解痴呆症患者的服务用户体验。本文还探讨了在医疗环境中以艺术为基础的研究方法。方法本研究采用艺术研究法和叙事研究法。艺术家有广泛的机会接触痴呆症患者、家庭护理人员和临床团队。项目是通过临床工作人员，艺术和卫生主任，艺术家，病人和家庭照顾者之间的合作创建的。每次演出都伴随着一个讨论痴呆症的公开研讨会。每次驻留后都进行评价。创建艺术的反应痴呆症的过程中概述，介绍和讨论。结果艺术作品受到好评，并多次被要求举办演出和展览。对每个居住地的评估表明，对痴呆症的了解有所增加。艺术作品中的叙述有助于了解痴呆症。其结果是一个新的室内乐作品，一系列视觉艺术家和病人和家庭护理人员之间的合作创造的视觉艺术作品和舞蹈电影的灵感来自舞者的居住，所有通过叙事调查。讨论与结论：这些项目支持以艺术为基础的研究作为创造性过程和定性研究方法的作用，有助于阐明和探索痴呆症的生活经验。艺术作为学习和理解复杂健康状况的反思工具，并为增加对痴呆症的理解和公众意识创造机会。在艺术为基础的研究在医疗环境中出现的问题突出，包括伦理问题，服务用户的叙事和多学科合作的重要性，在艺术和健康的实践和研究。
Introduction This paper presents three artists’ residencies in a geriatric medicine unit in a teaching hospital. The aim of the residencies was creation of new work of high artistic quality reflecting the lived experience of the person with dementia and greater understanding of service user experience of living with dementia. This paper also explores arts-based research methodologies in a medical setting. Method Arts-based research and narrative enquiry were the method used in this study. Artists had extensive access to service users with dementia, family carers and clinical team. Projects were created through collaboration between clinical staff, arts and health director, artist, patients and family carers. Each performance was accompanied by a public seminar discussing dementia. Evaluations were undertaken following each residency. The process of creating artistic responses to dementia is outlined, presented and discussed. Results The artworks were well received with repeat performances and exhibitions requested. Evaluations of each residency indicated increased understanding of dementia. The narratives within the artworks aided learning about dementia. The results are a new chamber music composition, a series of visual artworks created collaboratively between visual artist and patients and family carers and a dance film inspired by a dancer’s residency, all created through narrative enquiry. Discussion and conclusion: These projects support the role of arts-based research as creative process and qualitative research method which contributes to illuminating and exploring the lived experience of dementia. The arts act as a reflective tool for learning and understanding a complex health condition, as well as creating opportunities for increased understanding and public awareness of dementia. Issues arising in arts-based research in medical settings are highlighted, including ethical issues, the importance of service user narrative and multidisciplinary collaboration in arts and health practice and research.