From diagnosis to birth: parents' experience when expecting a child with congenital anomaly.
From diagnosis to birth: parents' experience when expecting a child with congenital anomaly.
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DOI：
10.1097/01.anc.0000342768.94734.23
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发表时间：
2008-12-01
期刊：
影响因子：
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通讯作者：
Rempel, Gwen
中科院分区：
文献类型：
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作者：
Askelsdottir, Bjork;Conroy, Sherrill;Rempel, Gwen
在加拿大每年出生的35万名儿童中，有2%至3%的儿童患有严重的先天性异常。由于最近超声诊断的改进和产前扫描频率的增加，许多异常是在产前确定的，更多的父母收到令人不安的，意想不到的异常消息。本文重点介绍了经验，关注和医疗保健需求的父母谁收到产前诊断的先天性异常，在常规超声检查，并选择继续妊娠。来自父母访谈的例子描述了他们的经历，补充了处理这一现象的稀疏文献。父母描述了他们的经验，从产前诊断和准备孩子的出生和随后进入新生儿重症监护室。注意新生儿护士如何积极影响这一进程，参加父母的感受或情绪。结论包括新生儿护理这些弱势的父母的建议。
Of 350,000 Canadian children born each year, 2% to 3% will have a serious congenital anomaly. Because of recent ultrasound diagnostic improvements and increased frequency of prenatal scans, many anomalies are determined prenatally, with more parents receiving disturbing, unanticipated news of an anomaly. This article highlights the experiences, concerns, and healthcare needs of parents who receive a prenatal diagnosis of congenital anomaly during routine ultrasound and choose to continue with the pregnancy. Examples from parent interviews describing their experience complement the sparse literature dealing with this phenomenon. Parents describe their experience from antenatal diagnosis and preparation for the child's birth and subsequent admission to the neonatal intensive care unit. Attention is paid to how neonatal nurses can positively influence this process by attending to parents' feelings or moods. The conclusion includes recommendations for neonatal nursing care for these vulnerable parents.