The contractual genome: how direct-to-consumer genomic services may help patients take ownership of their DNA
The contractual genome: how direct-to-consumer genomic services may help patients take ownership of their DNA
复制标题
DOI：
10.2217/17410541.5.4.399
复制
发表时间：
2008-07-01
影响因子：
2.3
通讯作者：
Sharp, Richard R.
中科院分区：
文献类型：
--
作者：
Foster, Morris W.;Sharp, Richard R.
传统临床环境之外的商业服务对个人基因组进行测序和基因分型可能有助于塑造研究对象和患者对其 DNA 中所含信息的控制和责任的期望。增强个人对个人基因组信息的所有权意识可以取代过于复杂和家长式的机构代理来保护个人基因型和序列数据，并且还可以鼓励研究参与者和患者更好地了解疾病的遗传因素。
The sequencing and genotyping of personal genomes by commercial services outside traditional clinical settings may help to shape the expectations of research subjects and patients regarding control of and responsibility for the information contained in their DNA. A greater sense of individual ownership of personal genomic information could replace overly complex and paternalistic institutional proxies for the protection of personal genotype and sequence data, and also could encourage research participants and patients to become better educated regarding genetic contributors to disease.