Parental Decision-Making in Cancer Therapy: A Long-Term Observational Study
Parental Decision-Making in Cancer Therapy: A Long-Term Observational Study
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DOI：
10.1177/00099228221150606
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发表时间：
2023-01
影响因子：
1.6
通讯作者：
Ryoko Michinobu;Masaki Yamamoto;Y. Sakai;T. Mikami;Keita Igarashi;Kotoe Iesato;Akira Takebayashi;T. Hori;H. Tsutsumi;T. Tsugawa
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作者：
Ryoko Michinobu;Masaki Yamamoto;Y. Sakai;T. Mikami;Keita Igarashi;Kotoe Iesato;Akira Takebayashi;T. Hori;H. Tsutsumi;T. Tsugawa
父母参与儿童癌症治疗的共同决策至关重要，因为父母倡导并支持孩子的愿望。然而，很少有研究关注这个问题。我们对 7 名孩子接受过首次癌症治疗的父母进行了纵向观察研究。我们在 1 个儿科病房和 2 个门诊诊所记录了父母的行为、互动和叙述。使用面向变量和面向过程的模式对录音进行系统地进行和主题分析，以评估现象之间的因果关系。我们发现了 4 个主题，描述了父母制定和参与共同决策的过程。前两个主题反映了互惠父母关系和父母与其他孩子关系的发展。这两种类型的关系在父母之间产生了相互信任和团结感（第三个主题）。这反过来又成为父母与医疗保健专业人员分享决策的基础（第四个主题）。
Parental participation in shared decision-making in children’s cancer therapy is essential because parents advocate for and support their children’s wishes. However, little research has focused on this issue. We conducted a longitudinal observational study of 7 parents whose child had received their first cancer treatment. We recorded parents’ behaviors, interactions, and narratives in 1 pediatric ward and 2 outpatient clinics. The recordings were systematically conducted and thematically analyzed using variable-oriented and process-oriented modes to assess the causal relationships among phenomena. We found 4 themes describing the processes by which parents developed and participated in shared decision-making. The first 2 themes reflected the development of reciprocal parental relationships and parent-other child relationships. These 2 types of relationship generated mutual trust and a sense of solidarity among parents (the third theme). This, in turn, became the foundation for parents to share decision-making with health care professionals (the fourth theme).