Rural dementia carers: formal and informal sources of support
Rural dementia carers: formal and informal sources of support
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DOI：
10.1017/s0144686x12000827
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发表时间：
2014-02-01
期刊：
影响因子：
2.5
通讯作者：
Robinson, Andrew
中科院分区：
文献类型：
--
作者：
Orpin, Peter;Stirling, Christine;Robinson, Andrew
初级护理人员为社区居住的痴呆症患者（PWD）提供大部分日常护理。维持这种贡献需要更深入地了解主要照顾者的角色以及该角色产生的支持需求。本研究探讨了正式和非正式的支持利用模式的人照顾一个残疾人在农村地区的背景下。深入的半结构式访谈进行了18个农村初级照顾者的残疾人和主题分析。参与者的主要护理人员几乎完全致力于并专注于自己的角色，并假设对残疾人福祉的最终责任，这意味着外部社会背景（例如乡村）变得不那么重要。照顾者网络有效地与那些在照顾任务中支持他们的关键人物签订了合同。外部支助来源得到严格管理，在向残疾人提供直接护理方面有严格的界限，除专业提供者外，基本上排除了所有提供者。初级照顾者通常与其他家人和朋友沿着被归类为非正式照顾。然而，在承担主要责任的照顾和福利的残疾人，他们有效地成为关键的护理提供者，这表明它将是富有成效的研究和实践，以对待初级护理人员作为一个护理伙伴关系的关键成员一起专业护理人员，而不是作为正式的护理和/或另一个客户端。
Primary carers provide much of the day-to-day care for community-dwelling people living with dementia (PWD). Maintaining that contribution will require a more in-depth understanding of the primary carer role and the support needs that flow from that role. This study explored patterns of formal and informal support utilisation by people caring for a PWD in a rural-regional context. In-depth semi-structured interviews were conducted with 18 rural primary carers of a PWD and thematically analysed. Participant primary carers' almost total commitment to, and absorption in their role and their assumption of ultimate responsibility for the PWD's wellbeing meant that external social context, such as rurality, became less relevant. Carer networks effectively contracted to those key individuals who were central to supporting them in their caring task. External sources of support were tightly managed with strong boundaries around the provision of direct care to the PWD largely excluding all but professional providers. Primary carers are generally categorised along with other family and friends as informal care. However, in assuming primary responsible for the care and wellbeing for the PWD they effectively become the key care provider, suggesting that it would be productive in both research and practice to treat primary carers as key members of a care partnership alongside professional carers, rather than as adjuncts to formal care and/or another client.