Life satisfaction of young adults with spina bifida
Life satisfaction of young adults with spina bifida
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DOI：
10.1111/j.1469-8749.2007.00458.x
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发表时间：
2007-06-01
影响因子：
3.8
通讯作者：
Prevo, A. J. H.
中科院分区：
文献类型：
--
作者：
Barf, H. A.;Post, M. W. M.;Prevo, A. J. H.
本研究关注荷兰年轻脊柱裂患者的生活满意度及其决定因素。生活满意度数据（生活满意度问卷[LiSat-9]）与脑积水、病变水平、残疾和人口统计学变量相关。总共有179名年轻的SB成人参与（41%男性，年龄范围16- 25岁; 79% SB aperta，67%脑积水[HC]，39%依赖轮椅）。大多数人对他们的生活感到满意（24%不满意）。与人口参考组（28%不满意）没有发现差异。最不满意的是经济状况（44%），伴侣关系（49%）和性生活（55%）。最不满意的是与朋友（17%）和家人（15%）的联系。年轻的成年人与SB和HC更满意他们的经济状况和家庭生活，但不太满意的自我照顾能力和伙伴关系比那些没有HC和参考组。然而，除了自我照顾能力，生活满意度和SB之间的关系很弱。总之，自我照顾能力和伙伴关系被评为最不利的，可能需要更多的关注，从护理提供者。总的来说，SB似乎不是生活满意度的重要决定因素。
This study concerns life satisfaction and its determinants in Dutch young adults with spina bifida (SB). Data on life satisfaction (Life Satisfaction Questionnaire [LiSat-9]) were related to hydrocephalus, lesion level, disabilities, and demographic variables. In total, 179 young adults with SB participated (41% male, age range 16-25y; 79% SB aperta, 67% hydrocephalus [HC], 39% wheelchair-dependent). Most were satisfied with their life as a whole (24% dissatisfied). No difference was found from a population reference group (28% dissatisfied). Highest proportions of dissatisfaction were found for financial situation (44%), partnership relations (49%), and sex life (55%). Least dissatisfaction was found for contact with friends (17%) and families (15%). Young adults with SB and HC were more satisfied with their financial situation and family life but were less satisfied with self-care ability and partnership relations than those without HC and the reference group. However, except for self-care ability, relationships between life satisfaction and having SB were weak. In conclusion, self-care ability and partnership relations were rated least favourable and may need more attention from care providers. Overall, SB does not seem to be an important determinant of life satisfaction..