Results of a Quantitative Survey to Explore Both Perceptions of the Purposes of Follow-up and Preferences for Methods of Follow-up Delivery Among Service Users, Primary Care Practitioners and Specialist Clinicians after Cancer Treatment
Results of a Quantitative Survey to Explore Both Perceptions of the Purposes of Follow-up and Preferences for Methods of Follow-up Delivery Among Service Users, Primary Care Practitioners and Specialist Clinicians after Cancer Treatment
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DOI：
10.1016/j.clon.2010.06.008
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发表时间：
2010-12-01
影响因子：
3.4
通讯作者：
Maher, E. J.
中科院分区：
文献类型：
--
作者：
Frew, G.;Smith, A.;Maher, E. J.
目的 确定服务使用者（患者和护理人员）、初级保健医生和专科临床医生（医生和专科护士）对癌症治疗后随访原因的看法，并确定对不同随访模式的偏好程度以及个人经历对首选模式的影响。 评估他们对 10 种预选随访适应症的偏好程度 还确定了八种随访模式，并要求受访者陈述他们对每种类型的经验和偏好 调查问卷通过英格兰 34 个癌症网络在全国范围内分发，并可在线和硬拷贝（邮寄）形式获取 电子格式主要由初级保健从业者和专科临床医生采用 服务使用者更喜欢纸质（邮寄）格式 调查还进行了公开 通过癌症网络发展活动中的初级保健和患者伙伴关系论坛 结果 总共收到 2928 份答复，其中包括服务使用者（样本的 21%）、初级保健从业者（32%）和专科临床医生（47%） 86% 的答复来自英格兰 10 个战略卫生当局，其余 14% 来自苏格兰威尔士和马恩岛 来自苏格兰威尔士和马恩岛的答复 通常发生在他们与英国癌症网络互动或通过同事的口口相传参与的情况下 在所有受访者中，癌症随访的主要目的被认为是 (1) 监测治疗后的早期并发症 (2) 及早发现复发 (3) 检测治疗的晚期影响 所有受访者群体中最常用的随访方法是由医生进行门诊审查 这被认为是服务使用者中最优选的随访选择 (86%) 服务使用者中最不喜欢的选择是邮寄随访 (32%) 与服务使用者相比，初级保健医生和专科临床医生更有可能经历过替代性随访方法，例如电话随访、自我触发转诊和非专科随访。有过这些经验的人对这些模式给予高度评价结论。 对随访的期望，特别是与及早发现复发相关的随访期望 由于受访者更有可能更喜欢他们经历过的随访交付方法而不是他们没有经历过的随访交付方法，因此在没有充分解释的情况下，可能会抵制从现有方法更改为新方法这表明新方法的沟通对其成功引入至关重要 (C) 2010 年皇家放射科医生学院由爱思唯尔有限公司出版版权所有
Aims To ascertain perceptions of reasons for follow-up after cancer treatment among service users (patients and carers) primary care practitioners and specialist clinicians (doctors and specialist nurses) and to identify levels of preference for different models of follow-up and the effect of an individual s experience on preferred modelsMaterials and methods A national survey designed to meet the needs of each key respondent group was carried out after a structured literature review an extensive consultation process and a pilot scheme Respondents were asked to assess their degree of preference for 10 pre-selected indications for follow-up Eight models of follow-up were also identified and respondents were asked to state their experience and preference for each type The questionnaire was distributed nationally via the 34 cancer networks in England and was available both online and in hard copy (postal) The uptake for the electronic format was in the main by primary care practitioners and specialist clinicians Service users preferred the paper (postal) format The survey was also publicised through the primary care and patient partnership forums at a Cancer Network Development eventResults In total 2928 responses were received comprising service users (21% of the sample) primary care practitioners (32%) and specialist clinicians (47%) Eighty-six per cent of responses were received from the 10 strategic health authorities in England with the remaining 14% from Scotland Wales and The Isle of Man The responses from Scotland Wales and the Isle of Man generally occurred where they Interfaced with English cancer networks or had been engaged through word of mouth by colleagues Among all respondents the main aims of cancer follow-up were considered to be (1) to monitor for early complications after treatment (2) to detect recurrences early (3) to detect late effects of treatment The most commonly experienced method of follow-up among all respondent groups was outpatient review with a doctor This was considered to be the most preferred follow-up option among service users (86%) The least preferred option among service users was postal follow-up (32%) Primary care practitioners and specialist clinicians were more likely than service users to have experienced alternative methods of follow-up such as telephone follow-up self-triggered referral and non-specialist follow-up These models were highly rated by those who had experience of themConclusions There was a reasonable level of consensus between service users primary care practitioners and specialist clinicians as to the reasons for follow-up Service users seemed to have higher expectations of follow-up particularly in relation to detecting recurrences early As respondents were more likely to prefer a method of follow-up delivery that they had experienced than one they had not there could be resistance to change from established methods to new methods without adequate explanation This suggests that the communication of new methods could be critical to their successful introduction (C) 2010 The Royal College of Radiologists Published by Elsevier Ltd All rights reserved