Re-building relationships after a spinal cord injury: experiences of family caregivers and care recipients
Re-building relationships after a spinal cord injury: experiences of family caregivers and care recipients
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DOI：
10.1186/s12883-019-1347-x
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发表时间：
2019-06-08
期刊：
影响因子：
2.6
通讯作者：
Jaglal, Susan B.
中科院分区：
文献类型：
--
作者：
Jeyathevan, Gaya;Cameron, Jill I.;Jaglal, Susan B.
背景脊髓损伤（spinal cord injury，SCI）后，家属往往被要求承担起恢复的角色。SCI患者与家人之间关系的性质变化可能导致情感、心理和关系方面的挑战。关于SCI患者和他们的家庭照顾者如何适应他们受伤后的新生活，或者使用何种二元应对策略来维持关系的研究有限。因此，本研究的目的是深入了解1）的经验和挑战，在一个亲密的关系后SCI之间的配偶，以及父母和成年子女;和2）所使用的应对策略的照顾者和照顾对象，以维持/重建他们的relationships.MethodsA定性描述性的方法与探索性的设计。进行了半结构化的面对面和电话访谈。主题分析被用来确定关键的主题所产生的个人与SCI的（n=19）和他们的家庭照顾者的（n=15）experiences.ResultsIndividuals与SCI和家庭照顾者谈到了深入和公开的经验和挑战后，受伤，有两个新兴的主题（包括随后的子主题）。第一个主题是关系恶化，反映了造成受伤后关系破裂的挑战/因素，包括：保护行为、不对称依赖、失去性和亲密关系以及难以适应。重建/维持关系的第二个主题，反映了二人组用来适应伤害所带来的关系变化的策略，包括：相互依赖，改变共性，在日常生活中增加创造力，创造一个新的normal.ConclusionsThese研究结果应该提醒医疗保健专业人员和同伴支持团体需要可能的教育和培训（例如，应对策略、沟通技巧培训）以及出院前的咨询，以帮助SCI患者和家庭照顾者适应伤后的新生活。
BackgroundFollowing spinal cord injury (SCI), family members are often called upon to undertake the caregiving role. This change in the nature of the relationship between the individuals with SCI and their families can lead to emotional, psychological, and relationship challenges. There is limited research on how individuals with SCI and their family caregivers adapt to their new lives post-injury, or on which dyadic coping strategies are used to maintain relationships. Thus, the objectives of this study were to obtain an in-depth understanding of 1) the experiences and challenges within a caregiving relationship post-SCI among spouses, as well as parents and adult children; and 2) the coping strategies used by caregivers and care recipients to maintain/rebuild their relationships.MethodsA qualitative descriptive approach with an exploratory design was used. Semi-structured face-to-face and telephone interviews were conducted. Thematic analysis was used to identify key themes arising from individuals with SCI's (n=19) and their family caregivers' (n=15) experiences.ResultsIndividuals with SCI and family caregivers spoke in-depth and openly about their experiences and challenges post-injury, with two emerging themes (including subsequent sub-themes). The first theme of deterioration of relationship, which reflects the challenges experienced/factors that contributed to disintegration in a relationship post-injury, included: protective behaviours, asymmetrical dependency, loss of sex and intimacy, and difficulty adapting. The second theme of re-building/maintaining the relationship, which reflects the strategies used by dyads to adjust to the changes within the relationship brought upon by the injury, included: interdependence, shifting commonalities, adding creativity into routine, and creating a new normal.ConclusionsThese findings should alert healthcare professionals and peer support groups as to the need for possible education and training (e.g., coping strategies, communication skills training) as well as counseling prior to discharge to assist individuals with SCI and family caregivers with adaptation to a new life post-injury.