Future expectations: adolescents with rheumatic diseases and their transition into adulthood.

Future expectations: adolescents with rheumatic diseases and their transition into adulthood.
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未来期望:患有风湿性疾病的青少年及其向成年的过渡。

DOI:
10.1093/rheumatology/35.1.80
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发表时间:
1996
期刊:
British journal of rheumatology
影响因子:
--
通讯作者:
P. White
P. White
中科院分区:
--
文献类型:
--
作者:
P. White

文献摘要

被引文献

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IN many countries and societies today, young people with disabilities are isolated and out of sight. Thus, there are insufficient epidemiological data to determine the magnitude of the population of young people with chronic conditions that limit functioning, like juvenile rheumatic diseases. Global data suggest that between 5 and 10% of the entire population between the ages of 10 and 24 yr are limited functionally (see Table I). Over the past 25 yr, the prevalence of activity limiting chronic illness and disabilities has doubled from 2 to 4% of the US population, ages 0-24. Owing to better medical technologies, these populations of young people are growing in number and are surviving into adulthood; whereas, as little as 20 yr ago, most would have died of their illnesses [1, 2]. Today in the USA 90% of those born with a disability will reach their 20th birthday. With increasing survival, the morbidity and functional disability of many diseases have become clearer, such as has been seen with childhood-onset systemic lupus erythema tosus [3]. The concept of having these children with chronic illnesses and disabilities moving on to the adult-oriented world is becoming an important issue for society and the medical profession [4].Transition is defined as the planned movement of adolescents and young adults with chronic illnesses and disabilities from child-centred systems to adult-oriented systems, such as moving from paediatric to adult health care systems, from school to work and/or from home to independent living in the community. These types of transitions are important for all teenagers, healthy or ill, and the purpose of this editorial is to address the transitional issues within the medical system facing teenagers and young adults with significant chronic illnesses or disabilities, such as juvenile chronic arthritis.