Quality of life of people with epilepsy: A European study
Quality of life of people with epilepsy: A European study
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DOI：
10.1111/j.1528-1157.1997.tb01128.x
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发表时间：
1997-03-01
期刊：
影响因子：
5.6
通讯作者：
Monnet, D
中科院分区：
文献类型：
--
作者：
Baker, GA;Jacoby, A;Monnet, D
目的：研究癫痫及其治疗对欧洲癫痫患者的影响。因此，我们的目的是收集尽可能多的countries as possible.Methods：临床和人口统计学的细节和信息的心理社会功能，收集使用自填问卷邮寄给成员的癫痫supportsgroups.Results：生活质量的数据收集从>5,000例患者生活在15个国家在欧洲。超过三分之一的受访者经常癫痫发作，五分之一的受访者认为他们的癫痫发作没有被抗癫痫药物控制得很好。报告的药物副作用水平很高。相当多的受访者报告说，由于副作用或控制不良而改变了他们的药物。受访者报告说，癫痫及其治疗对其日常生活的许多不同方面产生了重大影响。一半的受访者认为他们的癫痫病是耻辱。有显着差异的癫痫发作类型和频率的方式，受访者得分的措施，他们的条件，与它相关的耻辱和他们的健康状况，衡量的通用规模，SF 36。结论：这项研究证实了以前较小的研究结果-大规模研究表明，减少副作用和更好地控制癫痫发作是改善癫痫患者生活质量的关键，减少与此相关的耻辱和障碍也是如此。
Purpose: To study the impact of epilepsy and its treatment on people with epilepsy in Europe. We therefore aimed to collect data from as many countries as possible.Methods: Clinical and demographic details and information about psychosocial functioning was collected using self-completed questionnaires mailed to members of epilepsy support groups.Results: Quality of life data was collected from >5,000 patients living in 15 countries in Europe. Over a third of all respondents had frequent seizures, and a fifth believed that their seizures were not well enough controlled by antiepileptic medication. Reported levels of side effects from medication were high. A significant number of respondents reported changing their medication because of side effects or poor control. Respondents reported that epilepsy and its treatment had a significant impact on a number of different aspects of their daily lives. Half of all respondents felt stigmatised by their epilepsy. There were significant differences by seizure type and frequency in the way respondents scored on measures of the perceived impact of their condition, the stigma associated with it and their health status as measured by a generic scale, the SF36.Conclusions: This study confirms the findings of previous smaller-scale studies that reducing side effects and achieving better control of seizures are key to improving the quality of life of people with epilepsy, as is reducing the stigma and handicap associated with it.