Knowledge, understanding, and uptake of noninvasive prenatal testing among Latina women

Knowledge, understanding, and uptake of noninvasive prenatal testing among Latina women
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DOI:
10.1002/pd.4599
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发表时间:
2015-08-01
期刊:
影响因子:
3
通讯作者:
Taylor, Joanne
Taylor, Joanne
中科院分区:
医学2区
文献类型:
--
作者:
Farrell, Rachel;Hawkins, Anne;Taylor, Joanne

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目的本研究的目的是评估拉丁裔孕妇对无创产前检查(NIPT)的理解,并确定影响接受/拒绝NIPT的因素,以适应该人群的需求和兴趣。方法在整个妊娠期间对拉丁裔孕妇进行英语和西班牙语的混合方法调查。(67%的回复率); 34.9%的人选择进行NIPT,65.1%的人拒绝。大约一半的参与者(44%)在六个问题中的NIPT知识得分为3。两个最重要的影响因素吸收NIPT是一个较高的教育水平报告(p=0.015)和较高的NIPT知识得分(p=0.014); 42.9%的参与者知道,NIPT只屏幕某些染色体条件; 39%的妇女拒绝NIPT将永远不会考虑NIPT在future.Conclusions三分之一的拉丁妇女选择NIPT;报告的较高教育水平和语言最能预测这一选择。总体知识显着较低的妇女拒绝NIPT。了解较少可能表明,由于知情同意的程度不同,并非所有妇女都在作出知情决定。提供文化定制的信息可以帮助妇女驾驭产前检测的复杂性,以便做出最符合其价值观的决定。(C)2015年约翰威利父子有限公司
Objective The aim of this study is to assess Latina patient understanding of noninvasive prenatal testing (NIPT) and identify what factors influence uptake/refusal to NIPT to adapt counseling to the needs and interests of this population.Methods Mixed-methods survey in English and Spanish administered to pregnant Latina patients throughout pregnancy.Results Sixty-three women participated in our study (67% response rate); 34.9% chose to do NIPT, and 65.1% declined. Approximately half of participants (44%) had an NIPT knowledge score of 3 out of six total questions. Two of the most significant factors influencing uptake of NIPT were a higher reported educational level (p=0.015) and a higher NIPT knowledge score (p=0.014); 42.9% of participants knew that NIPT only screens for certain chromosomal conditions; 39% of women who declined NIPT would never consider NIPT in the future.Conclusions One-third of Latina women elected NIPT; a higher reported educational level and language were most predictive of this choice. Overall knowledge was significantly lower for women who declined NIPT. Lower knowledge may suggest that not all women are making informed decisions because of varying degrees of informed consent. Providing culturally tailored information can help women navigate the complexities of prenatal testing in order to make decisions most aligned with their values. (C) 2015 John Wiley & Sons, Ltd.