Alzheimer disease International's 10/66 Dementia Research Group - One model for action research in developing countries
Alzheimer disease International's 10/66 Dementia Research Group - One model for action research in developing countries
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DOI：
10.1002/gps.1059
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发表时间：
2004-02-01
影响因子：
4
通讯作者：
Scazufca, M
中科院分区：
文献类型：
--
作者：
Prince, M;Graham, N;Scazufca, M
背景10/66痴呆症研究小组(10/66)成立于1998年，是一个主要由来自发展中国家的100多名研究人员组成的网络。10/66致力于鼓励在这些地区进行更多高质量的研究，据估计，这些地区生活着三分之二的痴呆症患者。它代表了学者、临床医生和国际非政府组织阿尔茨海默病国际的合作。方法在拉丁美洲、印度、非洲、中国和东南亚的26个中心进行的10/66项试点研究表明，教育和文化公平的诊断是可以实现的目标。尽管扩大了家庭护理网络，但这些研究也发现，照顾者面临着高度的实际、心理和经济压力。六个中心的基于人口的研究现在将估计流行率，描述影响，并寻求在新的环境中确定遗传和环境风险因素。在实践层面上，10/66研究了如何避免发展中国家缺乏求助的问题，并开发了一种低水平的干预措施来教育和培训照顾者。结论与ADI及其国际网络的联系，以及ADI成员的志愿精神促进了10/66的快速增长。这一伙伴关系有助于提高认识和对政策的影响，因为ADI和国家阿尔茨海默氏症协会可以利用10/66的研究证据来指导和支持宣传。版权所有()2004 John Wiley Sons，Ltd.
Background The 10/66 Dementia Research Group (10/66) founded in 1998, is a network of over 100 researchers from mainly developing countries. 10/66 is committed to encourage more good quality research in those regions, where an estimated two-thirds of all those with dementia live. It represents a collaboration of academics, clinicians, and an international non-governmental organization, Alzheimer's Disease International (ADI).Method 10/66 pilot studies in 26 centres in Latin America, India, Africa and China and SE Asia suggest that education and culture-fair diagnosis is an attainable aim. Despite extended family care networks, these studies also identified high levels of practical, psychological and economic strain upon caregivers. Population-based studies in six centres will now estimate prevalence, describe impact and seek to identify genetic and environmental risk factors in novel settings. At a practical level, 10/66 has studied ways to circumvent the lack of help-seeking in developing countries, and has developed a low-level intervention to educate and train caregivers.Conclusion The links with ADI and its international networks, and the volunteerism of ADIs members have fostered the rapid growth of 10/66. The partnership facilitates both the raising of awareness and influence upon policy, as 10/66 research evidence can be used by ADI and national Alzheimer's Associations to direct and support advocacy. Copyright () 2004 John Wiley Sons, Ltd.