Adolescents With Cancer: Experience of Life and How It Could Be Made Easier
Adolescents With Cancer: Experience of Life and How It Could Be Made Easier
复制标题
患有癌症的青少年：生活体验以及如何让生活变得更轻松
作者：
H. Hokkanen;E. Eriksson;Outi Ahonen;S. Salantera
这项研究是关于患有癌症的青少年如何看待他们的生活状况、他们获得的支持以及他们收到的有关疾病的信息。这项定性和描述性研究的数据是通过对参加癌症调整营的 20 名 13 至 18 岁青少年进行 3 次焦点小组访谈而收集的。解释是基于归纳内容分析的方法。青少年对其现状的体验被分析为5类：对此时此地生活的看法、因疾病而对自我产生的负面体验、自我认识的资源、疾病给周围生活带来的困难以及在周围世界中识别的资源。他们很少（如果有的话）有意识地为未来做好计划。青少年收到的信息涉及他们此时此刻的疾病及其治疗、各种实际问题以及疾病及其治疗的未来影响。这些信息大部分集中在此时此地，而青少年的信息需求主要面向未来。对于青少年参与有关照顾和生活的决策的机会，分析得出了六类：共同决策、决策机会不足、独立决策、决策幻觉、不愿做决定和被排除在决策之外。最后，青少年对改善的希望集中在工作人员的活动、身体护理设施、通过他们的疾病经历进行讨论和工作的机会以及从社会获得的支持。
This study is about what adolescents with cancer think about their life situation, the support they get, and the information they receive about their illness. The data for this qualitative and descriptive study were collected in 3 focus group interviews with 20 adolescents aged 13 to 18 years attending a cancer adjustment camp. Interpretation was based on the method of inductive content analysis. The adolescents' experiences of their current situation were analyzed into 5 categories: views on life here and now, negative experiences of self because of the illness, resources recognized in self, difficulties caused by the illness in relation to life around them, and resources identified in the world around. They made very little, if any, conscious effort to plan ahead for the future. The information received by the adolescents concerned their illness and its treatment here and now, various practical matters, as well as the future impacts of the illness and its treatments. Most of this information focused on the here and now, whereas the adolescents' information needs were mainly oriented to the future. As for the adolescents' chances to take part in making decisions about their care and life, the analysis yielded 6 categories: joint decision making, inadequate chances for decision making, independent decision making, illusion of decision making, reluctant to make decisions, and excluded from decision making. Finally, the adolescents' hopes for improvement were focused on staff activities, physical care facilities, chances to discuss and work through their experiences of the illness, and the support received from society.
患有癌症的青少年的希望及其特征。
影响因子：
1.8
作者：
Hinds,PS;Quargnenti,A;Fairclough,D;Bush,AJ;Betcher,D;Rissmiller,G;Pratt,CB;Gilchrist,GS
通讯作者：
Gilchrist,GS