Providing Support at Time of Death From Cancer: Results of a 5-Year Post-Bereavement Group Study
Providing Support at Time of Death From Cancer: Results of a 5-Year Post-Bereavement Group Study
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DOI：
10.1080/15524256.2011.593156
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发表时间：
2011-01-01
影响因子：
1.6
通讯作者：
Gnesdiloff, Sabine
中科院分区：
文献类型：
--
作者：
Clark, Paul G.;Brethwaite, Drucilla S.;Gnesdiloff, Sabine
尽管晚期癌症患者的临终关怀和姑息治疗的质量和可用性都有所提高，但针对临终过程中家庭成员和相关人员的社会心理需求的研究主要局限于护理人员。此外，许多研究都集中在最近失去亲人的人身上。在这项研究中，作者试图通过研究次要幸存者的心理社会需求来拓宽这一视角，次要幸存者这个术语适用于照顾者、家庭成员和其他与临终者有关怀关系的人。在结构化的8周心理教育悲伤小组经历结束后，对继发性癌症幸存者表达的需求进行了定性探索，结果显示继发性癌症幸存者经历了一种孤立感和无力感，而这通常是医生、护士、肿瘤社会工作者或其他卫生保健专业人员所没有意识到的。此外，这些次要幸存者需要的支持远远超出了传统上与临终者的身体和情感护理相关的活动。社会工作干预策略旨在帮助二级幸存者维护个人需求，与卫生保健团队建立更密切的联系，并为与生命结束相关的过程做好准备，这些策略可能在后来的丧亲过程中有所帮助。
Despite advances in the quality and availability of hospice and palliative care for people with end stage cancers, research addressing the psychosocial needs of family members and concerned others during the dying process has been limited primarily to caregivers. In addition, many of these studies focused on the recently bereaved. In this study, the authors sought to broaden that perspective by examining the psychosocial needs of secondary survivors, a term that applies to caregivers, family members, and others who felt a caring bond with a dying person. A qualitative exploration of needs expressed by secondary survivors following the conclusion of a structured 8-week psychoeducational grief group experience revealed that secondary cancer survivors experience a sense of isolation and powerlessness that is often unrecognized by physicians, nurses, oncology social workers, or other health care professionals. Furthermore, these secondary survivors needed support that extends well beyond activities that are traditionally associated with the physical and emotional care of the dying. Social work intervention strategies directed toward helping secondary survivors assert personal needs, develop greater proximity with the health care team, and prepare for the processes associated with end-of-life may be helpful later during bereavement.