The dynamics of change: Cancer patients' preferences for information, involvement and support
The dynamics of change: Cancer patients' preferences for information, involvement and support
复制标题
DOI：
10.1023/a:1008284006045
复制
发表时间：
1997-09-01
影响因子：
50.5
通讯作者：
Boyer, MJ
中科院分区：
文献类型：
--
作者：
Butow, PN;Maclean, M;Boyer, MJ
背景。虽然向癌症患者提供个性化交流的重要性现在已得到充分认识，但人们对患者表达的信息偏好和参与决策的稳定性和有效性知之甚少。这项研究探讨了这种偏好随着时间的推移的稳定性和可能的预测因素。患者和方法。在澳大利亚一家教学医院的门诊部接受两名内科肿瘤学家治疗的癌症患者在一次会诊前后和下次会诊前完成了一组调查问卷。80名患有异质性癌症的连续患者参与了这项研究。在每次评估时，对一般和具体信息、参与和支持的偏好都得到了回答。在第一次会诊前测量患者的控制点和对诊所的熟悉程度。会诊后直接评估患者对会诊的满意度。记录每位患者的人口学和疾病资料。对信息和参与的总体偏好相对稳定，至少在短期内是这样；然而，对特定信息主题的偏好有相当大的差异。最近病情恶化的患者更有可能希望逐渐减少参与决策。性别、看过的医生和宗教信仰也能预测患者的偏好。结论：情境因素，如疾病状态的改变，可能会改变患者对信息和参与的偏好。如果我们希望提供的信息和支持与患者表达的需求相匹配，我们必须在每次咨询时询问患者这些需求是什么。
Background. While the importance of providing individualised communication to cancer patients is now well recognised, little is known about the stability and validity of patients' expressed preferences for information and involvement in decision-making. This study explored the stability and possible predictors of such preferences over time.Patients and methods. Cancer patients seeing two Medical Oncologists in an out-patient clinic at an Australian teaching hospital completed a questionnaire battery before and directly after one consultation, and before their next consultation. Eighty consecutive patients with heterogeneous cancers participated in the study. Preferences for general and specific information, involvement and support were elicited at each assessment. Locus of control and patient familiarity with the clinic were measured before the first consultation. Patient satisfaction with the consultation was assessed directly after the consultation. Demographic and disease data were recorded for each patient.Results. General preferences for information and involvement were relatively stable, at least in the short term; however there was considerable variability in preferences for specific topics of information. Patients whose condition had recently worsened were more likely to want progressively less involvement in decision-making. Gender, the doctor seen and religion were also predictive of patient preferences.Conclusions: Situational factors, such as change in disease status, may alter a patient's preferences for information and involvement. If we wish to match the provision of information and support to the expressed needs of patients, we must ask patients at each consultation what those needs are.