Whose Personal Control? Creating Private, Personally Controlled Health Records for Pediatric and Adolescent Patients
Whose Personal Control? Creating Private, Personally Controlled Health Records for Pediatric and Adolescent Patients
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DOI：
10.1197/jamia.m2865
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发表时间：
2008-11-01
影响因子：
6.4
通讯作者：
Mandi, Kenneth D.
中科院分区：
文献类型：
--
作者：
Bourgeois, Fabienne C.;Taylor, Patrick L.;Mandi, Kenneth D.
个人控制的健康记录（PCHR）使患者能够存储，管理和共享自己的健康数据，并承诺前所未有的消费者访问医疗信息。在儿科人群中部署PCHR需要制定访问和安全策略，这些策略不仅适用于患者控制的记录，而且还适用于父母、监护人和第三方实体访问的记录。这种对健康信息的混合控制需要仔细考虑PCHR供应商的访问策略以及监管向PCHR的数据馈送的机构策略，以确保每个用户的隐私和机密性得到保护。这些政策必须确保遵守法律的规定，以防止意外披露，并必须保持病人与提供者关系的复杂互动。通过我们自己在实施Indivo PCHR方面的业务参与，我们提供了一个框架，用于理解和解决儿童，青少年和家庭获得PCHR所带来的挑战。
Personally controlled health records (PCHRs) enable patients to store, manage, and share their own health data, and promise unprecedented consumer access to medical information. To deploy a PCHR in the pediatric Population requires crafting of access and security policies, tailored to a record that is not only under patient control, but one that may also be accessed by parents, guardians, and third-party entities. Such hybrid control of health information requires careful consideration of both the PCHR vendor's access policies, as well as institutional policies regulating data feeds to the PCHR, to ensure that the privacy and confidentiality of each user is preserved. Such policies must ensure compliance with legal mandates to prevent unintended disclosures and must preserve the complex interactions of the patient-provider relationship. Informed by our own operational involvement in the implementation of the Indivo PCHR, we provide a framework for understanding and addressing the challenges posed by child, adolescent, and family access to PCHRs.