Social Independence among Adult Congenital Heart Disease Patients in Japan
Social Independence among Adult Congenital Heart Disease Patients in Japan
复制标题
日本成人先天性心脏病患者的社会独立性
DOI：
10.1111/ped.13260
复制
发表时间：
2017
影响因子：
1.4
通讯作者：
Parents’ Association of Heart Disease Children
中科院分区：
文献类型：
--
作者：
Ochiai R;Ikeda Y;Kato H;Shiraishi I;Parents’ Association of Heart Disease Children
随着先天性心脏病（CHD）治疗效果的改善，成人CHD患者的社会独立性已成为一个关键目标。因此，本研究的目的是（i）确定社会独立性和心理状况之间的关系，（ii）确定患者的焦虑，困难，并要求有关的生活在society.MethodsA共143例年龄≥15岁的身体残疾证书被选中，使用由患者协会分发的问卷。每个参与者都被问及就业状况，收入和残疾抚恤金的领取情况作为社会独立指数，以及经济和心理困扰作为心理状况指数。此外，每个参与者被要求自由地描述他或她的困难，焦虑，和需要有关的生活在society.ResultsThe主题是15-73岁。其中71人（50%）为女性，94人（66%）持有1级肢体残疾证书。59名受试者（41%）有工作，37名（26%）失业，45名（31%）是学生。在就业者中，34名受试者（58%）报告年个人收入≤ 200万日元。频繁的医院就诊，低家庭总收入，低个人年收入，工作不满意，并收到残疾抚恤金与较差的心理状况。在一个开放的描述部分，主题表示希望更好的养老金制度，医疗费用的支持，就业support.ConclusionsBecause财政问题会对成年冠心病患者的心理状况产生不利影响，加强社会福利和就业支持，可能会提高他们的社会独立性。
BackgroundAs treatment outcomes for congenital heart disease (CHD) have improved, the social independence of adult CHD patients has become a key goal. The aims of this study were therefore to (i) determine the relationship between social independence and psychological profile, and (ii) identify patient anxieties, difficulties, and demands related to life in society.MethodsA total of 143 patients aged ≥15 years with physical disability certificates were selected using a questionnaire distributed by a patients' association. Each participant was asked about employment status, income, and receipt of disability pension as a social independence index, and about financial and psychological distress as a psychological status index. Furthermore, each participant was asked to freely describe his or her difficulties, anxieties, and needs pertaining to life in society.ResultsThe subjects were 15–73 years old. Seventy‐one (50%) were female, and 94 (66%) had a grade 1 physical disability certificate. Fifty‐nine subjects (41%) were employed, 37 (26%) were unemployed, and 45 (31%) were students. Of those employed, 34 subjects (58%) reported annual individual income ≤2 million yen. Frequent hospital visits, low total household income, low individual annual income, work dissatisfaction, and receipt of a disability pension were associated with poorer psychological profile. In an open description section, subjects expressed desires for better pension systems, support for medical fees, and employment support.ConclusionsBecause financial issues can adversely affect the psychological profiles of adult CHD patients, enhancement of social welfare and employment support may improve their social independence.