The key aspects of online support that older family carers of people with dementia want at the end of life: A qualitative study
The key aspects of online support that older family carers of people with dementia want at the end of life: A qualitative study
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DOI：
10.1080/13607863.2019.1642299
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发表时间：
2019-07-26
影响因子：
3.4
通讯作者：
Walters, Kate
中科院分区：
文献类型：
--
作者：
Davies, Nathan;Iliffe, Steve;Walters, Kate
目标：临终家庭照顾者面临一系列困难的挑战，并有高度的支持需求。这项研究的目的是探讨痴呆症患者的护理人员在生命末期面临的挑战，以及可以通过在线支持解决的支持需求。方法：2016-2017年对23名英国痴呆症患者的现任和前任家庭照顾者进行半结构化访谈，进行定性研究。访谈采用专题分析方法进行分析。结果：大多数接受采访的护理人员对通过网站获得在线支持持积极态度。参与者描述了一系列挑战，他们认为在线支持可以解决并帮助他们在照顾痴呆症患者临终时提供支持：1)感觉准备和装备；2)感觉被连接和支持；3)平衡自身需求与个人需求；4)保持控制并成为护理的协调者。然而，许多人在接受支持时重视技术和人际互动的结合。结论：这项研究确定了临终护理人员面临的主要挑战，这些挑战可以通过在线支持来解决。在线支持提供了一种补充面对面接触的支持来源，因为许多护理人员仍然希望亲自与人交谈。这可能有助于减轻卫生和社会保健系统目前面临的压力。
Objectives: Family carers towards the end of life face a range of difficult challenges and have high levels of support needs. The aim of this study was to explore the challenges carers of people with dementia face towards the end of life and the support needs which could be addressed by online support. Methods: Qualitative study using semi-structured interviews with 23 current and former family carers of people with dementia in England in 2016-2017. Interviews were analysed using thematic analysis methods. Results: Most carers interviewed had positive views of receiving support online via a website. Participants described a series of challenges they felt online support could address and help support them with when caring for someone with dementia towards the end of life: 1) feeling prepared and equipped; 2) feeling connected and supported; 3) balancing their own needs with those of the individual; and 4) maintaining control and being the co-ordinator of care. However many valued a mix of technology and human interaction in receiving support. Conclusions: This study has identified the key challenges for carers at the end of life that could be met by online support. Online support offers a source of support to supplement face-to-face contact, as many carers still wish to talk to someone in person. This could help alleviate pressures which health and social care systems currently face.