THE STIGMA OF DISEASE - IMPLICATIONS OF GENETIC SCREENING
THE STIGMA OF DISEASE - IMPLICATIONS OF GENETIC SCREENING
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DOI：
10.1016/0002-9343(92)90052-d
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发表时间：
1992-08-01
影响因子：
5.9
通讯作者：
MARKEL, H
中科院分区：
文献类型：
--
作者：
MARKEL, H
随着人类遗传学领域成功地继续揭开个人基因构成的秘密，对那些具有“不受欢迎”特征的人的社会过程和排斥有可能增加。可以说明将遗传技术应用于疾病预防的问题的一个历史例子是检疫制度。本文讨论了“隔离心态”的概念，以及对健康社会与那些被贴上“生病”或不正常标签的社会分开的渴望，并讨论了遗传学在美国历史上用于制定针对“患病”的社会政策的两个时期：20世纪初的优生学运动和20世纪70年代镰状细胞性贫血的早期基因筛查计划的尝试。
As the field of human genetics successfully continues to unravel the secrets of an individual's genetic makeup, the social processes of and ostracism of those with "undesirable" traits have the potential to increase. An historical example that may shed light on the problems of applying genetic technology to disease prevention is the institution of quarantine. This essay discusses the concept of "quarantine mentality" and the desire for healthy society to separate itself from those labeled "ill" or abnormal, and addresses two episodes in American history when genetics was applied to the formulation of social policy toward the "diseased": the eugenics movement of the early 20th century and the early attempts of genetic screening programs for sickle cell anemia during the 1970s.