Children Undergoing Radiotherapy: Swedish Parents' Experiences and Suggestions for Improvement.
Children Undergoing Radiotherapy: Swedish Parents' Experiences and Suggestions for Improvement.
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DOI：
10.1371/journal.pone.0141086
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发表时间：
2015
期刊：
影响因子：
3.7
通讯作者：
Lindh V
中科院分区：
文献类型：
--
作者：
Ångström-Brännström C;Engvall G;Mullaney T;Nilsson K;Wickart-Johansson G;Svärd AM;Nyholm T;Lindh J;Lindh V
瑞典每年约有300名0至18岁的儿童被诊断患有癌症。在这些儿童中，有80-90人因癌症接受放射治疗。虽然放射治疗是一个与先进技术的遭遇，很少有研究调查的孩子和父母的程序的看法。作为一项正在进行的多中心研究的一部分，旨在改善儿科放射治疗中的患者准备和护理环境，本文报告了基线时与父母访谈的结果。本研究的目的是双重的：描述父母的经验，当他们的孩子接受放射治疗，并报告父母的建议，改善他们的孩子在放射治疗。16名母亲和16名父亲的孩子在2-16岁之间的各种癌症诊断进行了采访。使用内容分析法对数据进行分析。研究结果表明，癌症和治疗使人们的生活发生了翻天覆地的变化，影响了整个家庭。此外，父母经历孩子的痛苦，必须科普强烈的感情。放射治疗包括由技术熟练和富有同情心的工作人员进行准备。父母逐渐发现他们可以处理这个过程;最后，父母在放射治疗期间提出了改进建议。出现了一个总体主题：这种绝望逐渐转变为安全感，持续关注儿童并与儿童密切互动。总之，在放疗开始时经历了一个极端的负担，尽管父母逐渐应对了这个过程。
Approximately 300 children, from 0 to 18 years old, are diagnosed with cancer in Sweden every year. Of these children, 80–90 of them undergo radiotherapy treatment for their cancer. Although radiotherapy is an encounter with advanced technology, few studies have investigated the child’s and the parent’s view of the procedure. As part of an ongoing multicenter study aimed to improve patient preparation and the care environment in pediatric radiotherapy, this article reports the findings from interviews with parents at baseline. The aim of the present study was twofold: to describe parents’ experience when their child undergoes radiotherapy treatment, and to report parents’ suggestions for improvements during radiotherapy for their children. Sixteen mothers and sixteen fathers of children between 2–16 years old with various cancer diagnoses were interviewed. Data were analyzed using content analysis. The findings showed that cancer and treatment turns people’s lives upside down, affecting the entire family. Further, the parents experience the child’s suffering and must cope with intense feelings. Radiotherapy treatment includes preparation by skilled and empathetic staff. The parents gradually find that they can deal with the process; and lastly, parents have suggestions for improvements during the radiotherapy treatment. An overarching theme emerged: that despair gradually turns to a sense of security, with a sustained focus on and close interaction with the child. In conclusion, an extreme burden was experienced around the start of radiotherapy, though parents gradually coped with the process.