Wearables in epilepsy and Parkinson's diseaseA focus group study
Wearables in epilepsy and Parkinson's diseaseA focus group study
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DOI：
10.1111/ane.12798
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发表时间：
2018-02-01
影响因子：
3.5
通讯作者：
Alt Murphy, Margit
中科院分区：
文献类型：
--
作者：
Ozanne, A.;Johansson, D.;Alt Murphy, Margit
目的测量运动和生理变量的可穿戴传感器在癫痫和帕金森病（PD）等神经系统疾病的临床评估中具有吸引力。本研究的目的是探讨癫痫和帕金森病患者以及与这些患者群体一起工作的卫生专业人员报告的关于在疾病监测和管理中使用可穿戴技术的看法。材料与方法采用焦点小组访谈法对6组患者（n=25）和2组卫生专业人员（n=15）进行定性、描述性研究。采用显性定性含量分析。结果从分析中得到4个大类和9个亚类。参与者看到了改善治疗效果的可能好处，并且更重视这种好处，而不是佩戴传感器可能带来的不便。离散设计和简单性被认为是提高可用性的促进因素。他们强调了患者与卫生专业人员之间互动信息的重要性。然而，他们担心的是信息不清晰和不确定的录音，以及对个人诚信的一些担忧，这些都与对互动性的期望不一致。结论患者需要在使用可穿戴设备时获得充分的信息并发现其附加价值。可穿戴设备需要用户友好，具有吸引人的设计，并在改善疾病管理方面显示临床疗效。对监督的完整性、利益和有效性的不同看法表明参与者之间可能存在期望冲突。在设计和实施过程中，终端用户、患者和卫生专业人员的参与对于可穿戴设备的开发至关重要，可穿戴设备可加强和促进神经康复实践。
ObjectivesWearable sensors that measure movement and physiological variables are attractive for clinical evaluation of neurological diseases such as epilepsy and Parkinson's disease (PD). The aim of this study was to explore perceptions regarding the use of wearable technology in disease monitoring and management as reported by individuals with epilepsy and Parkinson's disease as well as health professionals working with these patient groups.Materials and MethodsSix patient groups (n=25) and two groups with health professionals (n=15) participated in this qualitative, descriptive study with focus group interviews. A manifest qualitative content analysis was used.ResultsFour categories and nine subcategories emerged from the analysis. Participants saw possible benefits for improved treatment effect and valued this benefit more than possible inconvenience of wearing the sensors. Discrete design and simplicity were considered as facilitators for improved usability. They emphasized the importance of interactive information between patients and health professionals. However, they were concerned about unclear information and inconclusive recordings and some fears about personal integrity were at odds with the expectations on interactivity.ConclusionsPatients need to feel well informed and find an added value in using wearables. Wearables need to be user-friendly, have an attractive design, and show clinical efficacy in improving disease management. Variations in perceptions regarding integrity, benefits, and effectiveness of monitoring indicate possible conflicts of expectations among participants. The engagement of end users, patients, and health professionals, in the design and implementation process, is crucial for the development of wearable devices that enhance and facilitate neurological rehabilitation practice.