Impact of Facebook patient groups in the surgical decision making process: The example of Biocell® macro-textured implants recall
Impact of Facebook patient groups in the surgical decision making process: The example of Biocell® macro-textured implants recall
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DOI：
10.1016/j.anplas.2020.06.004
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发表时间：
2021-02-03
影响因子：
0.4
通讯作者：
Iezzoni, J.
中科院分区：
文献类型：
--
作者：
Danino, M. A.;Giaccone, D.;Iezzoni, J.
背景资料。-社交媒体的使用，在过去十年里是我们生活方式的重大变革。在BIA-ALCL危机的最前线，早在2019年2月，我们的大学中心就采取措施，识别并联系所有使用宏观纹理植入物的患者。这次召回的目的是为了教育患者，并建立一个监测系统。本工作的目的是分析患者的决策过程。-对要求和参加外科医生预约的患者进行了回顾性研究。收集有BIA-ALCL临床症状的患者数量、要求进行种植体取出手术的患者数量、术后发现的组织学诊断结果。然后，我们计算了在没有诊断甚至警告迹象的情况下需要移除种植体的患者中Facebook小组成员的比例。-770名妇女要求与我们科室的一名外科医生预约。在所有要求咨询的妇女中，497人(64.55%)有症状。199名患者是Facebook患者组的成员或曾参加过其中一组患者。在与外科医生的会诊结束时，近25%的患者决定不顾医生的建议取出植入物。在这些患者中，67%是Facebook网络上的一组患者。到目前为止，还没有患者被诊断为BIA-ALCL。-这些结果支持这样的假设，即对一些人来说，属于Facebook患者群体成为决策过程中的一个关键因素，而不是专家的意见。今后，应该在社交网络上与患者群体进行初步工作，以获得更多的健康效率。(C)2020年爱思唯尔·马森公司。版权所有。
Background. - The use of social media, has been a major upheaval in our lifestyles in the last decade. At the forefront in the crisis of BIA-ALCL, as soon as February 2019, our university centre took steps to identify and contact all patients with macro-textured implants. The purpose of this recall was to educate patients and establish a monitoring system. The purpose of this work is to analyse the patients' decision-making process.Methods. - A retrospective study of patients, who requested and attended appointments with a surgeon, was made. The number of patients with clinical symptoms of BIA-ALCL, the number of patients who requested implant removal surgery, the histological diagnoses found after surgery were collected. We then calculated the proportion of Facebook group members among patients who required implant removal in the absence of a diagnosis or even warning signs.Results. - Seven hundred and seventy women requested an appointment with one of the surgeons in our department. Of all the women who requested consultation, 497 (64.55%) had symptoms. 199 patients were members or had attended one of the Facebook groups of patients. At the end of the consultation with their surgeon, almost 25% of patients made a decision to have the implant removed against medical advice. Among these patients, 67% were part of a group of patients on the Facebook network. To date, no patient has been diagnosed with BIA-ALCL.Conclusions. - These results support the hypothesis that belonging to Facebook groups of patients becomes, for some, a key element in the decision-making process beyond expert opinion. In the future, preliminary work with patient groups on social networks should be done in order to obtain additional health efficiency. (C) 2020 Elsevier Masson SAS. All rights reserved.