Measuring chronic patients' feelings of being a burden to their caregivers -: Development and preliminary validation of a scale

Measuring chronic patients' feelings of being a burden to their caregivers -: Development and preliminary validation of a scale
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DOI:
10.1097/00005650-200301000-00013
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发表时间:
2003-01-01
期刊:
影响因子:
3
通讯作者:
Hébert, P
Hébert, P
中科院分区:
医学3区
文献类型:
--
作者:
Cousineau, N;McDowell, I;Hébert, P

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背景照顾者的负担已经被广泛研究,但病人自己的感觉是一个负担很少被检查。这种感觉可能会导致痛苦,并可能使与照顾者的关系复杂化。本报告描述了一个量表的发展和初步验证,以衡量病人的感知负担。材料和方法。一个概念框架和规模项目来自以前的文献和定性访谈患者和卫生专业人员。经过内容效度和项目清晰度分析,一个25个项目的规模。然后,在对100名接受血液透析的门诊患者进行结构验证时,将其进行给药。判别效度系数表明,负担得分是独立的年龄,教育和透析时间。收敛分析显示与合并症的数量有适度的相关性(r = 0.20,P
BACKGROUND. Burden on caregivers has been extensively studied, but the patient's own feelings of being a burden have rarely been examined. Such feelings may lead to distress and can complicate relations with the caregiver. This report describes the development and preliminary validation of a scale to measure patient-perceived burden.MATERIALS AND METHODS. A conceptual framework and scale items were derived from previous literature and from qualitative interviews with patients and health professionals. Following content validity and item clarity analyses, a 25-item scale was developed. This was then administered in a construct validation to 100 outpatients undergoing hemodialysis.RESULTS. Discriminant validity coefficients showed that burden scores were independent of age, education, and time on dialysis. Convergent analyses showed modest correlations with the number of comorbid conditions (r = 0.20, P