A protocol for linking participants' retailer 'loyalty card' records into the Avon Longitudinal Study of Parents and Children (ALSPAC).
A protocol for linking participants' retailer 'loyalty card' records into the Avon Longitudinal Study of Parents and Children (ALSPAC).
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DOI：
10.12688/wellcomeopenres.18900.1
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发表时间：
2023
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纵向人口研究（LPS）在提供个人消费模式和其他生活方式选择如何影响健康和社会经济结果的见解方面有着悠久的历史。LPS通常作为研究数据库运作，将丰富而深入的表型数据-涵盖个人，家庭和家庭状况的各个方面-与基因组数据以及有关健康和社会经济结果的相关记录相结合。然而，个人消费和行为选择传统上只使用自我报告的方法进行研究，容易出现已知的偏见。我们建议用一种新形式的数字足迹数据-个人购物历史记录来丰富LPS数据库。这些数据由超级市场通过“忠诚”卡计划收集，可以为真实的世界行为和消费历史提供新的视角。然而，作为纵向研究背景下的一类新数据，我们评估数据质量和完整性的能力是未知的，因为我们有能力有效地在自我报告和关联数据之间进行三角测量。本文介绍了一个协议，链接到LPS使用雅芳纵向研究的父母和孩子（ALSPAC）作为测试平台的个人水平的购物历史数据。该议定书涵盖建立参与者公平处理的过程、联系框架本身的道德和法律的基础以及如何将这些数据纳入ALSPAC数据库。它不包括这些数据的后续研究用途。该方案建立在广泛的参与者参与和可接受性工作的基础上，并已获得ALSPAC法律和伦理委员会的批准。
Longitudinal population studies (LPS) have a long history of providing insights into how individual consumption patterns and other lifestyle choices affect health and socio-economic outcomes. LPS typically operate as research databanks, integrating rich and deep phenotypic data - covering diverse aspects of individual, family and household status - with genomic data and linked records on health and socio-economic outcomes. However, individual consumption and behavioural choices are traditionally studied solely using self-report methods which are prone to known biases. We propose to enrich LPS databanks with a new form of digital footprint data – individual shopping history records. These are collected by supermarkets through “loyalty” card schemes and can provide a new perspective on real world behaviours and history of consumption. However, as a novel class of data in the context of longitudinal research, our ability to assess the quality and completeness of the data is unknown, as is our ability to effectively triangulate between self-reported and linked data. This paper describes a protocol for linking individual level shopping history data into a LPS using Avon Longitudinal Study of Parents and Children (ALSPAC) as a testbed. The protocol covers the process of establishing participant fair processing, an ethical and legal basis for the linkage framework itself, and how these data will be integrated into the ALSPAC databank. It does not cover the subsequent research use of these data. The protocol was built on an extensive participant engagement and acceptability work and has been approved by the ALSPAC Law and Ethics committee.