Stress and Burden Among Caregivers of Patients with Lewy Body Dementia

Stress and Burden Among Caregivers of Patients with Lewy Body Dementia
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DOI:
10.1093/geront/gnq055
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发表时间:
2011-02-01
期刊:
影响因子:
5.7
通讯作者:
Galvin, James E.
Galvin, James E.
中科院分区:
医学1区
文献类型:
--
作者:
Leggett, Amanda N.;Zarit, Steven;Galvin, James E.

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目的:与其他类型的痴呆症相比,路易体痴呆症(LBD)患者可能会出现一系列独特的症状,并对家庭照顾者提出挑战。突出的困难包括运动障碍、日常生活活动(ADL)障碍、复发性行为和情绪问题(BEP)以及诊断困难。这些问题可能会影响照顾者的主观负担。设计和方法:本研究使用的数据来自路易体痴呆协会进行的互联网调查。受访者是611人谁表示,他们目前参与照顾他们的亲属与LBD。主观负担评估与12个项目的简短版本的Zarit负担访谈。结果:因素分析揭示了三个维度的负担:角色紧张,个人紧张,担心的表现。多元回归被用来检查这些方面的预测。BEPs、ADL残疾、孤独、照顾者年龄和患者性别是特定因素的重要预测因子。福尔斯、正式服务使用、难以找到医生和对医生的评价与负担没有显著相关性。含义:这些研究结果突出了LBD患者的照顾者的负担经历以及BEPs,ADL援助和对LBD主观负担的认识的影响。
Purpose: Patients with Lewy body dementia (LBD) may present a unique set of symptoms and challenges to family caregivers compared with other types of dementia. Prominent difficulties include motor impairment, activities of daily living (ADLs) disability, recurrent behavioral and emotional problems (BEPs), and diagnostic difficulties. These problems are likely to affect caregivers' subjective burden. Design and Methods: The present study used data from an Internet survey conducted by the Lewy Body Dementia Association. Respondents were 611 people who indicated that they were currently involved in the care of their relative with LBD. Subjective burden was assessed with a 12-item short version of the Zarit Burden Interview. Results: A factor analysis revealed 3 dimensions of burden: role strain, personal strain, and worry about performance. Multiple regressions were used to examine predictors of these dimensions. BEPs, ADL disability, isolation, caregiver age, and patient gender were significant predictors of specific factors. Falls, formal service use, difficulty finding a physician, and evaluation of the physician had no significant associations with burden. Implications: These findings highlight burden experiences by caregivers of patients with LBD and the impact of BEPs, ADL assistance, and awareness about LBD on subjective burden.