NO NEWS IS NOT GOOD-NEWS - INFORMATION PREFERENCES OF PATIENTS WITH CANCER
NO NEWS IS NOT GOOD-NEWS - INFORMATION PREFERENCES OF PATIENTS WITH CANCER
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DOI：
10.1002/pon.2960040305
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发表时间：
1995-10-01
期刊：
影响因子：
3.6
通讯作者：
LEWIS, S
中科院分区：
文献类型：
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作者：
FALLOWFIELD, L;FORD, S;LEWIS, S
许多患者对临床医生提供的信息表示不满。当信息复杂或可能令人不安时，临床医生可能会故意隐瞒信息，特别是如果他们缺乏处理患者情绪反应的技能。其他人低估了患者需要的信息量。在这项研究中，一个异质样本的101名患者参加了一项试验，评估接受录音记录他们的“坏消息”咨询的好处，完成了一份类似于Cassileth的信息风格问卷。该问卷评估了患者对有关其疾病及其治疗的一般和具体信息的偏好。在样本中，94%的人表示希望从他们的肿瘤医生那里获得尽可能多的信息，无论是好的还是坏的; 4%的人只希望获得好消息的信息，2%的人拒绝额外的信息，宁愿把事情留给医生。与那些想要完全公开信息的患者相比，那些想要不太具体或没有额外信息的患者年龄更大，而且病情更差。尽管患者对精确信息的需求各不相同，但这项研究表明，癌症患者一般都希望充分了解诊断、预后、治疗方案和副作用。
Many patients express dissatisfaction with clinicians' information-giving. When the information is complex or potentially upsetting, clinicians may deliberately withhold information, especially if they lack the skills to handle patients' emotional reactions. Others underestimate the amount of information patients require. In this study, a heterogeneous sample of 101 patients participating in a trial assessing the benefits of receiving audio-taped recordings of their 'bad news' consultations, completed a questionnaire similar to Cassileth's Information Styles Questionnaire. This questionnaire assessed patients' preferences for both general and specific information about their disease and its treatment. Of the sample, 94% expressed a desire for as much information as possible from their oncologist, be it good or bad; 4% wished for information only if it was good news and 2% declined extra information, preferring to leave things up to the doctor. Patients wanting less specific or no extra information were older and had poorer prognoses than those wanting full disclosure. Although precise information needs varied between patients, this study showed that patients with cancer in general wish to be well-informed about diagnosis, prognosis, therapeutic options and side-effects.