Digital Storytelling: An Innovative Legacy-Making Intervention for Children With Cancer
Digital Storytelling: An Innovative Legacy-Making Intervention for Children With Cancer
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DOI：
10.1002/pbc.25337
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发表时间：
2015-04-01
影响因子：
3.2
通讯作者：
Gilmer, Mary Jo
中科院分区：
文献类型：
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作者：
Akard, Terrah Foster;Dietrich, Mary S.;Gilmer, Mary Jo
BackgroundThis study examined the reliability of a legacy making intervention in children with cancer and the preliminary effects on outcomes related to quality of life.ProcedureChildren（N=28）age 7-17 years completed a baseline QOL questionnaire（PedsQL）at T1.基线后，干预组（n=15）完成了一项随机干预，指导儿童回答有关遗产制作的问题，并创建一个关于自己的数字故事。数字故事的最后副本已提供给家庭。对照组（n=13）接受常规护理。儿童在T2时重复问卷。父母（N=22）的孩子谁完成了干预措施完成了后续调查问题的干预effects.ResultsFeasibility是强大的（78%的参与; 1磨损）。虽然两组之间在身体、情感、社会或学校功能变化方面的差异没有统计学意义，但与对照组相比，干预组的情感和学校功能略好。父母报告说，他们孩子的数字故事为他们提供了情感安慰（n=11，46%），促进了父母和孩子之间的沟通（n=9，38%），是他们的应对策略（n=4，17%）。父母报告说，干预措施帮助儿童表达自己的感情（n=19，79%），科普（n=6，27%），感觉更好的情绪（n=5，23%）。ConclusionsOur干预措施是可行的癌症儿童，是发展适合儿童7-17岁，并表现出承诺，以提高生活质量的癌症儿童和他们的父母的结果。儿科血液癌症2015;62：658-665。(c)2015 Wiley Periodicals，Inc.
BackgroundThis study examined the feasibility of a legacy-making intervention in children with cancer and the preliminary effects on outcomes related to quality of life.ProcedureChildren (N=28) ages 7-17 years completed a baseline QOL questionnaire (PedsQL) at T1. After baseline, the intervention group (n=15) completed a randomized intervention that guided children to answer questions about legacy-making and create a digital story about themselves. A final copy of the digital story was provided to the families. A control group (n=13) received customary care. Children repeated the questionnaire at T2. Parents (N=22) of children who completed the intervention completed follow-up survey questions regarding intervention effects.ResultsFeasibility was strong (78% participation; 1 attrition). While differences between the groups in physical, emotional, social, or school functioning change was not statistically significant, the intervention group showed slightly better emotional and school functioning compared to controls. Parents reported that their child's digital story provided emotional comfort to them (n=11, 46%), facilitated communication between parents and children (n=9, 38%), and was a coping strategy for them (n=4, 17%). Parents reported that the intervention helped children express their feelings (n=19, 79%), cope (n=6, 27%), and feel better emotionally (n=5, 23%).ConclusionsOur intervention is feasible for children with cancer, is developmentally appropriate for children 7-17 years of age, and demonstrates promise to improve quality of life outcomes for children with cancer and their parents. Pediatr Blood Cancer 2015;62:658-665. (c) 2015 Wiley Periodicals, Inc.