Online information and support needs of women with advanced breast cancer: a qualitative analysis
Online information and support needs of women with advanced breast cancer: a qualitative analysis
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DOI：
10.1007/s00520-018-4206-1
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发表时间：
2018-10-01
影响因子：
3.1
通讯作者：
Beatty, Lisa
中科院分区：
文献类型：
--
作者：
Kemp, Emma;Koczwara, Bogda;Beatty, Lisa
目的晚期乳腺癌（ABC）妇女面临着重大的调整挑战，但很少有资源为她们提供信息和支持，而且就诊障碍可能会阻碍她们获得面对面的心理社会支持。本文报告了两项定性研究，研究（i）ABC女性的信息和寻求支持偏好是否可以在在线干预中得到解决，以及（ii）如何对早期癌症患者的现有干预措施适用于ABC妇女。方法ABC妇女参加了电话采访，了解她们的信息和寻求支持的偏好（N = 21）并评估了针对早期癌症的在线干预（N = 15）。采访转录，并进行专题分析，使用的框架方法，以确定突出的themes.Results参与者最常见的寻求医疗，生活方式相关的，和实用的信息/支持，但是，当提出了一个在线干预，参与者最常见的积极反馈内容应对情绪困扰。据报告，很难找到信息，在使用包括保健专业人员、家人和朋友以及同龄人在内的共同信息/支持来源方面存在障碍;然而，一些妇女也报告说不需要信息或支持。评价现有干预措施的所有参与者都对各个组成部分给予了积极的反馈，结果表明，在线干预措施可能是向患有ABC的妇女提供信息/支持的有效手段，提高了特异性/与ABC的相关性，并增加了对个人情况和偏好的定制。结论适应现有的早期癌症在线干预似乎是一个有前途的途径，以解决信息和支持妇女的ABC需求。
Purpose Women with advanced breast cancer (ABC) face significant adjustment challenges, yet few resources provide them with information and support, and attendance barriers can preclude access to face-to-face psychosocial support. This paper reports on two qualitative studies examining (i) whether information and support-seeking preferences of women with ABC could be addressed in an online intervention, and (ii) how an existing intervention for patients with early stage cancer could be adapted for women with ABC.Methods Women with ABC participated in telephone interviews about their information and support-seeking preferences (N = 21) and evaluated an online intervention focused on early-stage cancer (N = 15). Interviews were transcribed and underwent thematic analysis using the framework method to identify salient themes.Results Participants most commonly sought medical, lifestyle-related, and practical information/support; however, when presented with an online intervention, participants most commonly gave positive feedback on content on coping with emotional distress. Difficulty finding information and barriers to using common sources of information/support including health professionals, family and friends, and peers were reported; however, some women also reported not wanting information or support. All participants evaluating the existing intervention gave positive feedback on various components, with results suggesting an online intervention could be an effective means of providing information/support to women with ABC, given improved specificity/relevance to ABC and increased tailoring to individual circumstances and preferences.ConclusionsAdaptation of an existing online intervention for early stage cancer appears to be a promising avenue to address the information and support needs of women with ABC.