Developing a Research Agenda for Integrating Palliative Care into Critical Care and Pulmonary Practice To Improve Patient and Family Outcomes
Developing a Research Agenda for Integrating Palliative Care into Critical Care and Pulmonary Practice To Improve Patient and Family Outcomes
复制标题
DOI：
10.1089/jpm.2016.0567
复制
发表时间：
2017-04-01
影响因子：
2.8
通讯作者：
Curtis, J. Randall
中科院分区：
文献类型：
--
作者：
Aslakson, Rebecca A.;Reinke, Lynn F.;Curtis, J. Randall
背景资料：姑息治疗是一种医学专业和护理理念，其重点是减少严重疾病患者及其家人的痛苦，无论疾病诊断或预后如何。由于危重病或中度至重度肺部疾病会带来显著的疾病相关症状负担，姑息治疗和姑息治疗专家可以帮助减轻这些患者及其家人的症状负担，提高他们的生活质量。目的：本文的目的是审查现有的差距，在证据姑息治疗肺部疾病和危重病，并利用一个跨学科的工作组召集的美国国立卫生研究院和国家姑息治疗研究中心制定一项研究议程，以解决这些gaps.Methods：我们完成了一个叙述性的文献回顾姑息治疗纳入肺和/或重症监护。该综述基于最近对这些主题的系统综述以及通过手动检索识别的相关文章的总结。我们利用这一审查，以确定目前的知识差距，并制定一个研究议程为future.Results：我们确定了关键领域的需求和知识差距，应加以解决，以改善姑息治疗的肺部和危重病患者。这些领域包括开发和验证以患者和家庭为中心的结果，确定有效和具有成本效益的姑息治疗的关键组成部分，开发和评估姑息治疗提供的不同模式，以及确定姑息治疗干预措施的有效性和成本效益。这项研究议程的目标是鼓励研究人员，临床医生，医疗保健系统，和研究资助者，以确定研究，可以解决这些差距，改善肺部和危重病患者及其家人的生活。
Background: Palliative care is a medical specialty and philosophy of care that focuses on reducing suffering among patients with serious illness and their family members, regardless of disease diagnosis or prognosis. As critical illness or moderate to severe pulmonary disease confers significant disease-related symptom burdens, palliative care and palliative care specialists can aid in reducing symptom burden and improving quality of life among these patients and their family members.Objective: The objective of this article is to review the existing gaps in evidence for palliative care in pulmonary disease and critical illness and to use an interdisciplinary working group convened by the National Institutes of Health and the National Palliative Care Research Center to develop a research agenda to address these gaps.Methods: We completed a narrative review of the literature concerning the integration of palliative care into pulmonary and/or critical care. The review was based on recent systematic reviews on these topics as well as a summary of relevant articles identified through hand search. We used this review to identify gaps in current knowledge and develop a research agenda for the future.Results: We identified key areas of need and knowledge gaps that should be addressed to improve palliative care for patients with pulmonary and critical illness. These areas include developing and validating patient-and family-centered outcomes, identifying the key components of palliative care that are effective and costeffective, developing and evaluating different models of palliative care delivery, and determining the effectiveness and cost-effectiveness of palliative care interventions.Conclusions: The goal of this research agenda is to encourage researchers, clinicians, healthcare systems, and research funders to identify research that can address these gaps and improve the lives of patients with pulmonary and critical illness and their family members.