How does carer resilience change over time and care status? A qualitative longitudinal study
How does carer resilience change over time and care status? A qualitative longitudinal study
复制标题
DOI：
10.1080/13607863.2018.1503998
复制
发表时间：
2019-11-02
影响因子：
3.4
通讯作者：
Soulsby, Laura K.
中科院分区：
文献类型：
--
作者：
Donnellan, Warren J.;Bennett, Kate M.;Soulsby, Laura K.
目标：很少有研究考察护理人员复原力的轨迹或随时间推移促进或阻碍复原力的因素。我们使用定性纵向方法来检查复原力轨迹，以及哪些资产和资源与配偶痴呆症护理人员的复原力和护理状态转变相关。方法：基于 23 名配偶痴呆症护理人员的原始样本（Donnellan、Bennett 和 Soulsby，2015 年），我们进行了 13 次后续访谈，其中包括：5 名继续家庭护理人员、3 名前护理人员（机构化）和 5 名前护理人员（丧偶）。结果：五名参与者保持弹性（稳定弹性），三名参与者保持非弹性（稳定非弹性），四名参与者变得弹性（非弹性到弹性）。只有一名参与者变得无弹性（有弹性到无弹性）。稳定的复原力的特点是持续的个人资产和社区资源。变得有弹性的护理人员返回到以前的资源，或获得新的资源。结论：收容机构和丧偶并不总是阻碍复原力的障碍；尽管被照顾者的健康状况恶化、被送入收容机构或死亡，但随着时间的推移，配偶痴呆症照顾者仍可以保持甚至变得有弹性。
Objectives: Little research examines trajectories of carer resilience or the factors that facilitate or hinder resilience over time. We use qualitative longitudinal methods to examine trajectories of resilience and which assets and resources are associated with resilience and care status transitions in spousal dementia carers. Method: Based on an original sample of 23 spousal dementia carers (Donnellan, Bennett, & Soulsby, 2015), we conducted 13 follow-up interviews, including: 5 continuing home carers, 3 former carers (institutionalised), and 5 former carers (widowed). Results: Five participants remained resilient (stable resilient), three remained non-resilient (stable non-resilient) and four participants became resilient (non-resilient to resilient). Only one participant became non-resilient (resilient to non-resilient). Stable resilience was characterised by continuing individual assets and community resources. Carers who became resilient returned to previous resources, or gained new resources. Conclusion: Institutionalisation and widowhood are not always barriers to resilience; spousal dementia carers can remain or even become resilient over time despite deteriorating health, institutionalisation, or death of the care recipient.