The multidimensional legal nature of personal genomic sequence data: A South African perspective.

The multidimensional legal nature of personal genomic sequence data: A South African perspective.
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DOI:
10.3389/fgene.2022.997595
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发表时间:
2022
影响因子:
3.7
通讯作者:
Shozi, Bonginkosi
Shozi, Bonginkosi
中科院分区:
生物学3区
文献类型:
--
作者:
Thaldar, Donrich W.;Townsend, Beverley A.;Donnelly, Dusty-Lee;Botes, Marietjie;Gooden, Amy;van Harmelen, Joanne;Shozi, Bonginkosi

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本文提供了适用于个人基因组序列数据的南非法律的各个方面的全面分析。这种分析包括财产权、人格权和知识产权。重要的是,关于个人基因组序列数据是否能够被拥有的问题得到了调查和肯定的回答。除了易受所有权影响外,个人基因组序列数据也是数据主体人格权的客体,也可以是知识产权的客体:无论是作为其自身的商业秘密,还是作为专利发明或受版权保护的数据集的一部分。研究表明,人格权约束所有权,而知识产权的使用同时受到人格权和所有权的约束。所有这些适用于个人基因组序列数据的权利都应该得到承认和协调,以使这些数据得到有效利用。
This article provides a comprehensive analysis of the various dimensions in South African law applicable to personal genomic sequence data. This analysis includes property rights, personality rights, and intellectual property rights. Importantly, the under-investigated question of whether personal genomic sequence data are capable of being owned is investigated and answered affirmatively. In addition to being susceptible of ownership, personal genomic sequence data are also the object of data subjects’ personality rights, and can also be the object of intellectual property rights: whether on their own qua trade secret or as part of a patented invention or copyrighted dataset. It is shown that personality rights constrain ownership rights, while the exploitation of intellectual property rights is constrained by both personality rights and ownership rights. All of these rights applicable to personal genomic sequence data should be acknowledged and harmonized for such data to be used effectively.