Use of a Medical Records Linkage System to Enumerate a Dynamic Population Over Time: The Rochester Epidemiology Project
Use of a Medical Records Linkage System to Enumerate a Dynamic Population Over Time: The Rochester Epidemiology Project
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DOI：
10.1093/aje/kwq482
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发表时间：
2011-05-01
影响因子：
5
通讯作者：
Rocca, Walter A.
中科院分区：
文献类型：
--
作者：
St Sauver, Jennifer L.;Grossardt, Brandon R.;Rocca, Walter A.
罗切斯特流行病学项目（REP）是一个独特的研究基础设施，其中几乎所有居住在明尼苏达州奥姆斯特德县的人40多年来的医疗记录都已被链接和存档。在本文中，作者描述了REP如何将来自多个医疗机构的医疗记录与特定个人联系起来，以及如何随着时间的推移确认住院。此外，作者为REP人口普查计数的有效性提供了证据。在1966年至2008年期间，有1,145,856份医疗记录与众议院的486,564人相关联。与随机拨号获得的居民名单、养老院和老年人综合体的居民名单、商业居民名单以及对记录的人工审查相比，发现REP人口普查是有效的。此外，REP人口普查计数与美国40年一次的人口普查计数相当（例如，它包括1970年的104.1%和2000年人口普查计数的102.7%）。每个人在系统中被关押的时间因年龄和历年的不同而有很大差异；然而，持续时间通常很长。像REP这样的综合医疗记录链接系统可以用来保持不断更新的人口普查，并为流行病学研究提供最佳的抽样框架。
The Rochester Epidemiology Project (REP) is a unique research infrastructure in which the medical records of virtually all persons residing in Olmsted County, Minnesota, for over 40 years have been linked and archived. In the present article, the authors describe how the REP links medical records from multiple health care institutions to specific individuals and how residency is confirmed over time. Additionally, the authors provide evidence for the validity of the REP Census enumeration. Between 1966 and 2008, 1,145,856 medical records were linked to 486,564 individuals in the REP. The REP Census was found to be valid when compared with a list of residents obtained from random digit dialing, a list of residents of nursing homes and senior citizen complexes, a commercial list of residents, and a manual review of records. In addition, the REP Census counts were comparable to those of 4 decennial US censuses (e. g., it included 104.1% of 1970 and 102.7% of 2000 census counts). The duration for which each person was captured in the system varied greatly by age and calendar year; however, the duration was typically substantial. Comprehensive medical records linkage systems like the REP can be used to maintain a continuously updated census and to provide an optimal sampling framework for epidemiologic studies.