Developing and implementing a culturally informedFAmilyMotivationalEngagementStrategy (FAMES) to increase family engagement in first episode psychosis programs: mixed methods pilot study protocol
Developing and implementing a culturally informedFAmilyMotivationalEngagementStrategy (FAMES) to increase family engagement in first episode psychosis programs: mixed methods pilot study protocol
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DOI：
10.1136/bmjopen-2020-036907
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发表时间：
2020-08-01
期刊：
影响因子：
2.9
通讯作者：
Cabassa, Leopoldo J.
中科院分区：
文献类型：
--
作者：
Oluwoye, Oladunni;Dyck, Dennis;Cabassa, Leopoldo J.
介绍尽管在美国首次发作精神病的协调专科护理（CSC）方案的有效性得到了证明，CSC方案往往有低水平的参与家庭心理教育，种族和少数民族家庭成员的参与甚至低于非拉丁美洲白色家庭成员。本研究的目标是开发和评估一个文化上知情的FAMES动机参与战略（FAMES）和实施工具包CSC providers.Methods and analysis本协议描述了一个混合的方法，多阶段的研究，融合干预映射和促进行动研究在卫生服务框架开发，修改和试点测试FAMES和配套的实施工具包。第一阶段将召集利益相关者咨询委员会，根据第一阶段和第二阶段的调查结果通报修改情况。在第一阶段，我们还将招募大约200名家庭成员完成在线调查，以评估参与治疗的障碍和动机。第二阶段，我们将招募5名家庭成员参加为期3个月的FAMES和实施工具包的试验。结果将指导咨询委员会完善干预和实施工具包。第三阶段将涉及一个为期16个月的非随机，stepped-wedge试验与50名家庭成员从五个CSC计划在社区为基础的精神卫生诊所，以检查的可接受性，可行性和初步影响FAMES和实施toolkit.Ethics和dissemination本研究获得机构审查委员会批准从华盛顿州立大学，协议#17 812-001。研究结果将通过同行评议出版物、在国家和国际会议上的介绍以及向当地社区精神卫生机构和委员会传播。
Introduction Despite the proven effectiveness of coordinated specialty care (CSC) programmes for first episode psychosis in the USA, CSC programmes often have low levels of engagement in family psychoeducation, and engagement of racial and ethnic minority family members is even lower than that for non-Latino white family members. The goal of this study is to develop and evaluate a culturally informed FAmily Motivational Engagement Strategy (FAMES) and implementation toolkit for CSC providers.Methods and analysis This protocol describes a mixed methods, multi-phase study that blends intervention mapping and the Promoting Action on Research in Health Services framework to develop, modify and pilot-test FAMES and an accompanying implementation toolkit. Phase 1 will convene a Stakeholder Advisory Committee to inform modifications based on findings from phases 1 and 2. During phase 1, we will also recruit approximately 200 family members to complete an online survey to assess barriers and motivation to engage in treatment. Phase 2 we will recruit five family members into a 3-month trial of the modified FAMES and implementation toolkit. Results will guide the advisory committee in refining the intervention and implementation toolkit. Phase 3 will involve a 16-month non-randomised, stepped-wedge trial with 50 family members from five CSC programmes in community-based mental health clinics to examine the acceptability, feasibility and initial impact of FAMES and the implementation toolkit.Ethics and dissemination This study received Institutional Review Board approval from Washington State University, protocol #17 812-001. Results will be disseminated via peer review publications, presentations at national and international conferences, and to local community mental health agencies and committees.