GIVING INFORMATION FOR A LIFE-THREATENING DIAGNOSIS - PARENTS AND ONCOLOGISTS PERCEPTIONS
GIVING INFORMATION FOR A LIFE-THREATENING DIAGNOSIS - PARENTS AND ONCOLOGISTS PERCEPTIONS
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DOI：
10.1001/archpedi.1984.02140450031010
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发表时间：
1984-01-01
影响因子：
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通讯作者：
LIPNICK, RN
中科院分区：
文献类型：
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作者：
GREENBERG, LW;JEWETT, LS;LIPNICK, RN
对美国各地的儿科医生和1977年至1980年在华盛顿，华盛顿特区儿童医院国家医学中心诊断为急性淋巴细胞白血病的儿童的家庭进行了调查，以确定父母和医生认为在威胁生命的诊断的最初表现期间传达什么信息是必不可少的。两个小组都认为以下主题对首次会议的讨论至关重要：疾病的诊断和预后，疾病过程的解释，确认和/或补充诊断所需的额外测试，立即治疗计划和医生的可用性。此外，父母和医生都同意关于疾病的信息应该传达的顺序。虽然急性淋巴细胞白血病被用作一个模型，这项研究表明，可用于培训居民和指导医生的危机咨询技术在介绍父母的诊断，他们的孩子的危及生命的疾病的指南。
Pediatric ocologists were surveyed throughout the USA and families of children with acute lymphocytic leukemia diagnosed between 1977 and 1980 at Children''s Hospital National Medical Center, Washington, D.C., to determine what information is perceived by both parents and physicians as essential to convey during the initial presentation of a life-threatening diagnosis. Both groups considered the following topics critical for discussion at the initial conference: diagnosis and prognosis of disease, explanation of disease process, additional tests needed to confirm and/or supplement the diagnosis, immediate therapeutic plan and the physician''s availability. Additionally, both parents and physicians with minor variations, agreed about the order in which information about the disease should be conveyed. Although acute lymphocytic leukemia was used as a model, this study suggests guideliness that could be utilized to train residents and guide physicians in crisis-counseling techniques in the presentation of parents of a diagnosis of life-threatening illness in their child.