Ethical issues in cystic fibrosis newborn screening: from data to public health policy.
Ethical issues in cystic fibrosis newborn screening: from data to public health policy.
复制标题
囊性纤维化新生儿筛查的伦理问题：从数据到公共卫生政策。
DOI：
10.1097/00063198-200211000-00008
复制
发表时间：
2002
影响因子：
3.3
通讯作者：
Rothenberg,LS
中科院分区：
文献类型：
--
作者：
Wilfond,Benjamin;Rothenberg,LS
Newborn screening for cystic fibrosis (CF) remains controversial largely because its implementation is less a scientific decision than a resolution of different and often conflicting normative values that underlie the policy issues framing the debate. This article summarizes the literature published between May 2001 and April 2002 (and relevant earlier literature) regarding the screening and treatment goals, clinical benefits and harms, and programmatic and ethical issues. Finally, we will present an analysis to argue for one set of ethical considerations that point to very specific policy recommendations that would justify CF newborn screening in certain circumstances and make its implementation more ethically appropriate.
