Children as partners with adults in their medical care
Children as partners with adults in their medical care
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DOI：
10.1136/adc.2005.079442
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发表时间：
2006-04-01
影响因子：
5.2
通讯作者：
Curtis, K
中科院分区：
文献类型：
--
作者：
Alderson, P;Sutcliffe, K;Curtis, K
目的：调查很少发表的1型糖尿病儿童对他们的病情的看法，以及他们与成人分享医疗和卫生保健的方式。研究方法：半结构化，录音采访，在2003年期间，有目的的样本24名儿童，年龄3 - 12岁，患有I型糖尿病，谁参加了两个内伦敦医院和一个医院在通勤城镇。结果如下：这些儿童报告说，他们从糖尿病患者的生活经历中获得了高水平的理解、知识和技能，并不断地考虑到病情和儿科医生的指导。他们的主要目标是“正常”和“继续他们的生活”。讨论内容：访谈表明，儿童患糖尿病的经历往往使他们能够根据自己的最佳利益做出明智的决定，即使在很小的时候。他们在社会健康“正常”和生理健康控制贫血的有时相互竞争的目标之间取得了复杂的平衡。他们的能力支持儿童权利和决策者的目标，糖尿病患者-包括儿童-获得更多的知识，技能，并与医疗保健专业人员合作，为自己的护理责任的方法。同意通常被认为与手术有关;然而，儿童表明他们如何不断处理关于同意或拒绝、遵守或抵制其规定治疗的决定。他们的健康取决于他们对医疗指导的知情承诺;需要对儿童承诺和负责任地共同管理其慢性病的日常现实进行更多的研究。
Aims: To investigate the seldom published views of children with type 1 diabetes about their condition and ways in which they share in managing their medical and health care with adults. Methods: Semi-structured, tape recorded interviews, during 2003, with a purposive sample of 24 children aged 3 - 12 years who have type I diabetes and who attend two inner London hospitals and one hospital in a commuter town. Results: The children reported high levels of understanding, knowledge, and skill gained from their experience of living with diabetes and constantly having to take account of the condition and their paediatrician's guidance. Their key goals were to be "normal" and "just get on with their lives". Discussion: The interviews showed that children's experiences of diabetes tended to enable them to make informed, "wise" decisions in their own best interests, even at a young age. They achieved a complicated balance between the sometimes competing goals of social health "being normal" and physiological health in controlling glycaemia. Their competence supports approaches in children's rights and in policy makers' aims that people with diabetes - including children - gain more knowledge, skills, and responsibility for their own care in partnership with healthcare professionals. Consent is usually considered in relation to surgery; however the children showed how they constantly dealt with decisions about consent or refusal, compliance with, or resistance to their prescribed treatment. Their health depends on their informed commitment to medical guidance; more research is needed about the daily realities of children's committed and responsible co-management of their chronic illness.