Understanding the Supports of and Challenges to Community Engagement in the CTSAs

Understanding the Supports of and Challenges to Community Engagement in the CTSAs
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DOI:
10.1111/cts.12205
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发表时间:
2015-04-01
影响因子:
3.9
通讯作者:
Kass, Nancy
Kass, Nancy
中科院分区:
医学3区
文献类型:
--
作者:
Holzer, Jessica;Kass, Nancy

文献摘要

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临床和转化科学奖(CTSA)计划提高了参与生物医学研究的形象和可用资金。这种增加的资金和关注可能会解决已知的参与障碍。然而,很少有工作已经完成,以描述跨多个CTSA的经验,特别是如何CTSA结构支持或挑战的参与。我们试图了解多个CTSA所经历的支持和挑战,因为他们追求社区参与。这方面的知识可能有助于指导未来的努力,以支持和加强社区参与生物医学research.MethodsWe进行了半结构化的,深入的访谈与CTSA社区参与核心领导人和工作人员从2006年队列的CTSAs(n = 12).ResultsA共17个访谈的受访者从9个机构确定了三个支持的主题,包括:供资、与社区的现有关系以及机构的领导和伙伴关系办法。产生了六个挑战主题:能力建设的需要,缺乏与社区的积极关系,缺乏领导,资金限制,时间和人员的限制,和不可持续的models.ConclusionThe CTSA带来了急需关注社区参与研究,但可以做更多的工作,以充分支持参与。挑战依然存在,需要加以解决,以实现参与的潜在效益。
BackgroundThe Clinical and Translational Science Award (CTSA) program has raised the profile and the available funding for engagement in biomedical research. Such increased funding and attention may address known barriers to engagement. However, little work has been done to describe experiences across multiple CTSAs, especially how the CTSA structure supports or challenges engagement.ObjectiveWe sought to understand the supports and challenges experienced by multiple CTSAs as they pursued community engagement. This knowledge may help guide future efforts to support and enhance community engagement in biomedical research.MethodsWe conducted semi-structured, in-depth interviews with CTSA community engagement core leaders and staff from the 2006 cohort of CTSAs (n = 12).ResultsA total of 17 interviews with respondents from nine institutions identified three support themes, including: funding, existing relationships with communities, and leadership and a partnership approach at the institution. Six challenge themes arose: need for capacity development, lack of positive relationships with communities, lack of leadership, funding constraints, time and staff constraints, and unsustainable models.ConclusionThe CTSAs have brought much-needed attention to community engagement in research, but more can be done to adequately support engagement. Challenges remain that need to be addressed to achieve the potential benefits of engagement.