Understanding of genetics among older adults
Understanding of genetics among older adults
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DOI：
10.1111/j.1547-5069.2006.00089.x
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发表时间：
2006-01-01
影响因子：
3.4
通讯作者：
Cohen, Marlene Z.
中科院分区：
文献类型：
--
作者：
Frazier, Lorraine;Calvin, Amy O.;Cohen, Marlene Z.
目的：描述和比较三个种族群体的老年人对基因检测和基因研究的态度、知识和信念，确定对遗传学的理解如何影响知情同意，并确定老年人参与基因研究决策的重要因素。方法：最初在社区环境中对 23 名非裔美国人、白人和西班牙裔成年人进行了三个焦点小组研究。讨论被录音并逐字转录。对成绩单进行了内容分析，并对每组参与者进行了第二次会议以确认分析。结果：确定了与遗传学和基因检测知情同意相关的四个常见主题：(a) 定义遗传学，(b) 证明基因检测的合理性，(c) 家庭参与，以及 (d) 有尊严的协议。结论：这项研究的结果表明，尽管这些老年人拥有有关遗传学的信息，但这些信息并不总是准确的。此外，该群体对提供者意见的尊重表明，医疗保健专业人员在提供遗传信息和以确保自愿和知情的方式获得同意方面发挥着重要作用。
Purpose: To describe and compare the attitudes, knowledge, and beliefs of older adults from three ethnic groups about genetic testing and genetic research, to determine how the understanding of genetics influences informed consent, and to identify factors that are important in older adults' decisions about participation in genetic research.Methods: Three focus groups were initially conducted with 23 African American, Caucasian, and Hispanic adults in community-based settings. Discussions were audiotaped and transcribed verbatim. Content analysis of transcripts was performed and a second session was conducted with participants from each group to confirm the analyses.Findings: Four common themes related to genetics and informed consent for genetic testing were identified: (a) defining genetics, (b) justifying genetic testing, (c) family involvement, and (d) dignified agreement.Conclusions: The findings from this study indicate that although these older adults had information about genetics, the information was not always accurate. In addition, deference among this cohort to providers' opinions showed the important role of healthcare professionals in providing genetic information and obtaining consent in ways that ensure it is voluntary and informed.