Pragmatic adaptations of telehealth-delivered caregiver coaching for children with autism in the context of COVID-19: Perspectives from the United States and South Africa.
Pragmatic adaptations of telehealth-delivered caregiver coaching for children with autism in the context of COVID-19: Perspectives from the United States and South Africa.
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DOI：
10.1177/13623613211022585
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发表时间：
2022-01
期刊：
影响因子：
--
通讯作者：
Dawson G
中科院分区：
文献类型：
--
作者：
Franz L;Howard J;Viljoen M;Sikich L;Chandrasekhar T;Kollins SH;Lee L;Ndlovu M;Sabatos-DeVito M;Seris N;Shabalala N;Spanos M;de Vries PJ;Dawson G
当COVID-19在全球范围内扰乱自闭症谱系障碍（ASD）研究时，许多行为干预的临床试验转向了远程医疗。远程保健有可能扩大研究的地理覆盖范围，改善研究中的种族/族裔多样性。这很重要，因为大多数ASD干预研究主要包括来自北美和欧洲的白色、中上收入家庭。参与者的同质性限制了我们确定哪种类型的干预措施在哪种情况下对哪种人群有效的能力。重要的是，远程保健需要“适合"当地情况，特别是包括考虑到”数字鸿沟“的战略。这份简短的报告详细介绍了两项ASD临床试验中的背景考虑和实施前的务实适应，其中包括美国和南非的早期启动丹佛模型（ESDM）知情的护理人员指导。通过比较和对比如何实现上下文通知远程医疗枢纽在这两个临床试验在不同的半球，我们强调适应公平的考虑。大流行病是一个了解远程干预如何“适应”不同背景的机会，同时提供有效的科学结果。然而，重要的是要记录适应情况，并跟踪适应方法的可行性。与COVID-19相关的远程医疗行为干预措施的调整可以促进具有更广泛全球影响的新战略的制定。
When COVID-19 disrupted autism spectrum disorder (ASD) research globally many clinical trials of behavioral interventions pivoted to telehealth. Telehealth has the potential to increase geographic reach and improve racial/ethnic diversity in research. This matters because most ASD intervention studies have primarily included White, upper-middle income families from North America and Europe. Participant homogeneity limits our ability to identify what types of intervention works in which context for which populations. Importantly, telehealth needs to ‘fit’ the local context, and in particular, include strategies that factor in the ‘digital divide’. This Short Report details contextual considerations and pre-implementation pragmatic adaptations in two ASD clinical trials that include Early Start Denver Model (ESDM)-informed caregiver coaching in the United States and South Africa. By comparing and contrasting how implementation context informed the telehealth pivot in these two clinical trials in different hemispheres we highlight equity considerations for adaption. The pandemic is an opportunity to understand how remote intervention can ‘fit’ diverse contexts, while providing valid scientific results. It is however important that adaptations be documented and feasibility of the adapted approach be tracked. COVID-19 related telehealth adaptations of behavioral interventions could facilitate the development of new strategies with wider global impact.
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影响因子：
3.9
作者：
Schreibman L;Dawson G;Stahmer AC;Landa R;Rogers SJ;McGee GG;Kasari C;Ingersoll B;Kaiser AP;Bruinsma Y;McNerney E;Wetherby A;Halladay A
通讯作者：
Halladay A
影响因子：
7.2
作者：
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通讯作者：
Miller, Christopher J.
DOI：
10.1177/1088357616651064
发表时间：
2018-06-01
影响因子：
2
作者：
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通讯作者：
Young, Gregory S.
影响因子：
4.7
作者：
Divan, Gauri;Vajaratkar, Vivek;Green, Jonathan
通讯作者：
Green, Jonathan
影响因子：
8
作者：
Dawson G;Rogers S;Munson J;Smith M;Winter J;Greenson J;Donaldson A;Varley J
通讯作者：
Varley J