It's made a really hard situation even more difficult: The impact of COVID-19 on families of children with chronic illness.
It's made a really hard situation even more difficult: The impact of COVID-19 on families of children with chronic illness.
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DOI：
10.1371/journal.pone.0273622
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发表时间：
2022
期刊：
影响因子：
3.7
通讯作者：
中科院分区：
文献类型：
--
作者：
两年多来，全球COVID-19大流行迫使卫生、社会和教育系统发生重大变革，同时对心理健康产生影响。本研究旨在了解慢性疾病儿童及其家庭在COVID-19时代面临的独特和额外挑战。在悉尼儿童医院的神经病学、癌症、肾脏和呼吸系统诊所接受慢性疾病治疗的儿童的父母被邀请参加。我们采用了定性方法，包括半结构化访谈指南、逐字抄录和QSR NVivo支持的专题分析。13名儿童的父母接受了三级护理，患有9种慢性病。家长们报告说，他们对生病孩子的额外脆弱性感到非常担忧，其中包括他们患COVID-19严重疾病的风险，以及如果父母感染COVID-19， COVID-19相关的中断对获得临床护理、药物、联合卫生支持和日常护理方案的潜在影响。家长认为远程医疗是一种非常方便和首选的方法，可以持续管理较不复杂的医疗保健需求。家长报告说，大流行期间增加了额外的压力和责任，加上社会交往受到限制，获得通常支持网络的机会减少，这对他们自己的心理健康有害。基于医院的探视限制减少了父母和孩子的情感支持、应对和恢复能力，在某些情况下导致婚姻不和、兄弟姐妹痛苦和经济损失。支持性因素包括在大流行期间增加了在家共度的时间，改善了学校的卫生习惯，这大大降低了慢性病儿童中与covid -19无关的传染病的发病率。对于照顾慢性病儿童的家庭来说，2019冠状病毒病使他们的处境更加艰难。大流行突出表明，需要对弱势家庭进行有针对性的心理社会干预，以减轻目前的心理健康负担，预防慢性心理困扰。
For over two years, the global COVID-19 pandemic has forced major transformations on health, social, and educational systems, with concomitant impacts on mental health. This study aimed to understand the unique and additional challenges faced by children with chronic illness and their families during the COVID-19 era. Parents of children receiving treatment for a chronic illness within the neurology, cancer, renal and respiratory clinics of Sydney Children’s Hospital were invited to participate. We used qualitative methodology, including a semi-structured interview guide, verbatim transcription, and thematic analysis supported by QSR NVivo. Thirteen parents of children receiving tertiary-level care, for nine chronic illnesses, participated. Parents reported intense fears relating to their ill child’s additional vulnerabilities, which included their risk of developing severe COVID-19 disease and the potential impact of COVID-19-related disruptions to accessing clinical care, medications, allied health support and daily care protocols should their parent contract COVID-19. Parents perceived telehealth as a highly convenient and preferred method for ongoing management of less complex healthcare needs. Parents reported that the accrual of additional stressors and responsibilities during the pandemic, experienced in combination with restricted social interaction and reduced access to usual support networks was detrimental to their own mental health. Hospital-based visitation restrictions reduced emotional support, coping, and resilience for both parents and children and in some cases led to marital discord, sibling distress, and financial loss. Supportive factors included increased time spent together at home during the pandemic and improved hygiene practices at school, which dramatically reduced the incidence of non-COVID-19-related communicable illnesses in chronically ill children. For families caring for a chronically ill child, COVID-19 made a difficult situation harder. The pandemic has highlighted the need for targeted psychosocial intervention for vulnerable families, to mitigate current mental health burden and prevent chronic psychological distress.
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影响因子：
7.7
作者：
Garfan S;Alamoodi AH;Zaidan BB;Al-Zobbi M;Hamid RA;Alwan JK;Ahmaro IYY;Khalid ET;Jumaah FM;Albahri OS;Zaidan AA;Albahri AS;Al-Qaysi ZT;Ahmed MA;Shuwandy ML;Salih MM;Zughoul O;Mohammed KI;Momani F
通讯作者：
Momani F
影响因子：
4
作者：
Durcan G;Barut K;Haslak F;Doktur H;Yildiz M;Adrovic A;Sahin S;Kasapcopur O
通讯作者：
Kasapcopur O
DOI：
10.1016/j.jcf.2020.07.022
发表时间：
2020-11
期刊：
Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society
影响因子：
--
作者：
Havermans T;Houben J;Vermeulen F;Boon M;Proesmans M;Lorent N;de Soir E;Vos R;Dupont L
通讯作者：
Dupont L
DOI：
10.1093/jpids/piaa126
发表时间：
2020-12-01
影响因子：
3.2
作者：
Kitano, Taito;Piche-Renaud, Pierre-Philippe;Science, Michelle
通讯作者：
Science, Michelle
影响因子：
3.6
作者：
Mercuri E;Zampino G;Morsella A;Pane M;Onesimo R;Angioletti C;Valentini P;Rendeli C;Ruggiero A;Nanni L;Chiaretti A;Vento G;Korn D;Meneschincheri E;Sergi P;Scambia G;Ricciardi W;Cambieri A;De Belvis AG
通讯作者：
De Belvis AG