Information and communication needs of Chinese American breast cancer patients: perspectives on survivorship care planning.
Information and communication needs of Chinese American breast cancer patients: perspectives on survivorship care planning.
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DOI：
10.12788/jcso.0095
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发表时间：
2014-12
期刊：
影响因子：
--
通讯作者：
Daly MB
中科院分区：
文献类型：
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作者：
Wen KY;Hu A;Ma GX;Fang CY;Daly MB
关于华裔美国人乳腺癌幸存者（CABCS）生存经历的现有知识主要来自多种族或多癌症研究的汇总数据，这些研究关注的是生活质量。我们对美籍华人对遗属护理的看法和偏好知之甚少。研究CABCS的经验，以更好地了解他们的信息和沟通需求以及他们对幸存者护理计划（scp）的偏好。通过美国东北部的社区组织招募了16名37-72岁的CABCS，对他们的乳腺癌生存经历进行了一对一的电话访谈。半结构化访谈用普通话、粤语或英语进行。两名调查人员将录音记录转录并翻译成英语，并使用定性内容分析的既定方法分析访谈记录。通过对访谈记录的分析，确定了三个主要主题：需要以证据为基础、在文化和语言上适当的健康信息；语言或沟通障碍和文化在获得护理和与提供者沟通方面的作用；以及SCP元素和格式的偏好。样本可能不能代表CABCS的全部人口。研究结果有助于深入了解CABCS的信息交流需求和SCP偏好。了解这些需求和偏好背后的文化差异对于改善CABCS癌症治疗后的生活质量至关重要。应开发包含中文资源并满足该人群独特文化需求的scp，其中应包括有关饮食和营养以及传统中医的信息。
The existing knowledge on the survivorship experiences of Chinese American breast cancer survivors (CABCS) has arisen largely from aggregated data across multiethnic or multicancer studies that have focused on quality of life. Little is known about Chinese American perspectives and preferences for survivorship care. To examine the experiences of CABCS to better understand their information and communication needs and their preferences for survivorship care plans (SCPs). 16 CABCS, aged 37-72 years, were recruited through community-based organizations in the Northeast United States to participate in one-on-one telephone interviews about their breast cancer survivorship experience. The semistructured interviews were conducted in Mandarin, Cantonese, or English. Two investigators transcribed and translated the audio recordings into English and analyzed the interview transcripts using established methods of qualitative content analysis. Three main themes were identified through analysis of interview transcripts: the need for evidence-based and culturally and linguistically appropriate health information; the role of language or communication barriers and culture in accessing care and communicating with providers; and preferences for SCP elements and format. The sample may not be representative of the entire population of CABCS. The findings provide insight into the information and communication needs and SCP preferences of CABCS. Understanding the cultural nuances that underlie these needs and preferences is critical for improving CABCS's quality of life after treatment for cancer. SCPs that incorporate Chinese-language resources and address the unique cultural needs of this population should be developed and they should include information about diet and nutrition as well as traditional Chinese medicine.