Preferences Regarding Transfer of Patients With Congenital Heart Disease Who Attend Children's Hospital
Preferences Regarding Transfer of Patients With Congenital Heart Disease Who Attend Children's Hospital
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DOI：
10.1253/circj.cj-18-1144
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发表时间：
2019-04-01
影响因子：
3.3
通讯作者：
Shiraishi, Isao
中科院分区：
文献类型：
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作者：
Ochiai, Ryota;Kato, Hitoshi;Shiraishi, Isao
背景资料：本研究的目的是要确定的偏好，关于转移的先天性心脏病（CHD）的患者参加儿童医院在Japanes.Methods和相关factors. Results：我们进行了一项自填式问卷调查，CHD患者> 15岁，在儿童医院的儿科心脏病门诊治疗。Logistic回归分析用于确定与患者转移偏好相关的因素。122例患者中有111例提供了有效问卷（有效应答率为91.0%）。66名受试者（64.9%）报告说，他们的医生“没有告诉任何具体的”关于从儿童医院转移，72名（59.5%）表示，他们“希望继续参加儿童医院”。与家长一起出诊（OR，11.00; 95%CI：2.01-60.97），对继续到儿童医院就诊的不确定性较低（OR，0.95; 95% CI：0.92-0.98），并且对离开现任医生有很高的不确定性（OR，1.04; 95%CI：1.01-1.07）与患者希望继续参加儿童医院的意愿显著相关。有必要改善关于转移机会的患者教育，为儿童医院和成人冠心病专科中心制定系统的过渡计划。
Background: The aim of this study was to determine preferences regarding transfer of patients with congenital heart disease (CHD) attending a children's hospital in Japan and related factors.Methods and Results: We conducted a self-administered questionnaire survey with CHD patients > 15 years of age treated at the pediatric cardiology outpatient clinic of a children's hospital. Logistic regression analysis was used to identify factors related to patient preferences regarding the transfer. One hundred and eleven of the 122 patients given a questionnaire provided valid responses (valid response rate, 91.0%). Sixty-six subjects (64.9%) reported "not being told anything specific" by their physicians about the transfer from the children's hospital, and 72 (59.5%) stated that they "wished to continue attending the children's hospital". Visiting outpatient clinic with parents (OR, 11.00; 95% CI: 2.01-60.97), having low uncertainty about continuing to attend the children's hospital (OR, 0.95; 95% CI: 0.92-0.98), and having high uncertainty about leaving the current physician (OR, 1.04; 95% CI: 1.01-1.07) were significantly related to the patient's wish to continue to attend the children's hospital.Conclusions: There is a need to improve patient education regarding the opportunities for transfer, and to develop a systematic transition program for children's hospitals and aligned specialized adult CHD centers.