Advance care planning in cystic fibrosis: Current practices, challenges, and opportunities
Advance care planning in cystic fibrosis: Current practices, challenges, and opportunities
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DOI：
10.1016/j.jcf.2015.08.004
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发表时间：
2016-01-01
影响因子：
5.2
通讯作者：
Cohen, Rubin I.
中科院分区：
文献类型：
--
作者：
Dellon, Elisabeth P.;Chen, Elaine;Cohen, Rubin I.
背景：囊性纤维化（CF）的研究报告了对提前护理计划（ACP）的关注。本研究的目的是检查在美国成人CF护理程序中接受护理的患者的ACP。方法：使用图表抽象来检查2011年至2013年期间死于呼吸衰竭的成人CF患者的ACP。死亡年龄中位数为29岁（范围18-73岁）。死亡前一年的FEV 1中位数为预测值的33%（范围13-100%）; 68%患有严重肺部疾病，FEV 1 < 40%预测值。129例（61%）记录了ACP，通常是在住院期间（61%）。ACP患者在生命的最后一个月之前有较早的治疗偏好记录（73% v. 35%; p = 0.001）。
Background: Studies in cystic fibrosis (CF) report late attention to advance care planning (ACP). The purpose of this study was to examine ACP with patients receiving care at US adult CF care programs.Methods: Chart abstraction was used to examine ACP with adults with CF dying from respiratory failure between 2011 and 2013.Results: We reviewed 210 deaths among 67 CF care programs. Median age at death was 29 years (range 18-73). Median FEV1 in the year preceding death was 33% predicted (range 13-100%); 68% had severe lung disease with FEV1 < 40% predicted. ACP was documented for 129 (61%), often during hospitalization (61%). Those with ACP had earlier documentation of treatment preferences, before the last month of life (73% v. 35%; p =